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المحتوى المقدم من Gracefully Jen. يتم تحميل جميع محتويات البودكاست بما في ذلك الحلقات والرسومات وأوصاف البودكاست وتقديمها مباشرة بواسطة Gracefully Jen أو شريك منصة البودكاست الخاص بهم. إذا كنت تعتقد أن شخصًا ما يستخدم عملك المحمي بحقوق الطبع والنشر دون إذنك، فيمكنك اتباع العملية الموضحة هنا https://ar.player.fm/legal.
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Laughing Through the Layers of Chronic Illness with Jewel

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Manage episode 416721602 series 3407225
المحتوى المقدم من Gracefully Jen. يتم تحميل جميع محتويات البودكاست بما في ذلك الحلقات والرسومات وأوصاف البودكاست وتقديمها مباشرة بواسطة Gracefully Jen أو شريك منصة البودكاست الخاص بهم. إذا كنت تعتقد أن شخصًا ما يستخدم عملك المحمي بحقوق الطبع والنشر دون إذنك، فيمكنك اتباع العملية الموضحة هنا https://ar.player.fm/legal.
When your world is turned upside down by chronic illness, finding humor and connection can be your lifeline. That's exactly what happened when Jewel, the effervescent @thelipedemacushie, joined me for a chat that'll make you laugh, and nod along with understanding. We dove into Jewel's experiences with Cushing's disease, her surgeries, and the daily dance with adrenal insufficiency. There's something incredibly powerful about sharing stories of resilience, and Jewel's candidness about her spine surgery and its aftermath reminds us all that strength often comes with a side of vulnerability.
Our conversation took a lighter turn as we mused over the quirky collections that pepper our lives—from my array of cups to my husband's stash of comic book memorabilia. We all have our treasures, don't we? The secret sweatshirt hoards, the spoons from travels, or that second fridge in the garage that silently marks our passage into adulthood—these collections tell the stories of our lives. And as we laughed about the closet wars waged with our loved ones, it was clear that these shared spaces hold more than just stuff; they hold the essence of our relationships, too.
Rounding off our tête-à-tête, Jewel and I touched on the peculiar world of mail delays and the sweet anticipation of giveaways that mean so much, particularly to those of us with chronic illnesses. We delved into the role of physical therapy, the non-negotiables of emergency medication, and the oddities of coordinating meals across time zones. It's not every day you get to plan lunch and breakfast simultaneously! Whether you're tuning in for a dose of empathy, a spot of crafting, or just to feel understood, this episode is a warm invite to join our community where chronic illness is part of the conversation, but not the whole story.
The Lipedema Cushie - Listen on YouTube, Spotify - Linktree

Send us a text

Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.

Let's Get Started - Rare Patient Voice

🎙 Living with a rare disease or chronic illness can feel isolating—but you are not alone. Find Your Rare is more than just a brand—it’s a movement. From empowering apparel to real, raw conversations, they’re here to remind you that your story matters. Because being RARE its your superpower. Explore, join & wear your rare with pride at FindYourRare.com

Support the show

Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSisters
https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)
Website:
https://myspooniesisters.com/

Discount Codes:

GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

  continue reading

فصول

1. Laughing Through the Layers of Chronic Illness with Jewel (00:00:00)

2. Chronic Health Struggles and Friendship (00:00:10)

3. Collecting Chronicles and Shared Spaces (00:17:03)

4. Mail Delays, Giveaways, and Physical Therapy (00:25:40)

5. Mealtime Scheduling and Live Streaming (00:38:51)

127 حلقات

Artwork
iconمشاركة
 
Manage episode 416721602 series 3407225
المحتوى المقدم من Gracefully Jen. يتم تحميل جميع محتويات البودكاست بما في ذلك الحلقات والرسومات وأوصاف البودكاست وتقديمها مباشرة بواسطة Gracefully Jen أو شريك منصة البودكاست الخاص بهم. إذا كنت تعتقد أن شخصًا ما يستخدم عملك المحمي بحقوق الطبع والنشر دون إذنك، فيمكنك اتباع العملية الموضحة هنا https://ar.player.fm/legal.
When your world is turned upside down by chronic illness, finding humor and connection can be your lifeline. That's exactly what happened when Jewel, the effervescent @thelipedemacushie, joined me for a chat that'll make you laugh, and nod along with understanding. We dove into Jewel's experiences with Cushing's disease, her surgeries, and the daily dance with adrenal insufficiency. There's something incredibly powerful about sharing stories of resilience, and Jewel's candidness about her spine surgery and its aftermath reminds us all that strength often comes with a side of vulnerability.
Our conversation took a lighter turn as we mused over the quirky collections that pepper our lives—from my array of cups to my husband's stash of comic book memorabilia. We all have our treasures, don't we? The secret sweatshirt hoards, the spoons from travels, or that second fridge in the garage that silently marks our passage into adulthood—these collections tell the stories of our lives. And as we laughed about the closet wars waged with our loved ones, it was clear that these shared spaces hold more than just stuff; they hold the essence of our relationships, too.
Rounding off our tête-à-tête, Jewel and I touched on the peculiar world of mail delays and the sweet anticipation of giveaways that mean so much, particularly to those of us with chronic illnesses. We delved into the role of physical therapy, the non-negotiables of emergency medication, and the oddities of coordinating meals across time zones. It's not every day you get to plan lunch and breakfast simultaneously! Whether you're tuning in for a dose of empathy, a spot of crafting, or just to feel understood, this episode is a warm invite to join our community where chronic illness is part of the conversation, but not the whole story.
The Lipedema Cushie - Listen on YouTube, Spotify - Linktree

Send us a text

Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.

Let's Get Started - Rare Patient Voice

🎙 Living with a rare disease or chronic illness can feel isolating—but you are not alone. Find Your Rare is more than just a brand—it’s a movement. From empowering apparel to real, raw conversations, they’re here to remind you that your story matters. Because being RARE its your superpower. Explore, join & wear your rare with pride at FindYourRare.com

Support the show

Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSisters
https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)
Website:
https://myspooniesisters.com/

Discount Codes:

GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

  continue reading

فصول

1. Laughing Through the Layers of Chronic Illness with Jewel (00:00:00)

2. Chronic Health Struggles and Friendship (00:00:10)

3. Collecting Chronicles and Shared Spaces (00:17:03)

4. Mail Delays, Giveaways, and Physical Therapy (00:25:40)

5. Mealtime Scheduling and Live Streaming (00:38:51)

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