S4E67: Dysautonomia, POTS, and PANS... Oh My!

Special Needs Kids Are People Too!

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تمت الإضافة منذ قبل four أعوام

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All About Change

1
Chris Nowinski - Protecting Athletes from Head Injuries & Preventing CTE 27:28

منذ 9 أيام27:28

التشغيل لاحقا

قوائم

إعجاب

احب

27:28

Chris Nowinski is a former football player at Harvard University and professional wrestler with WWE, World Wrestling Entertainment. After enduring a career-ending head injury, Chris has dedicated his professional life to serving patients and families affected by brain trauma, particularly Chronic traumatic encephalopathy, or CTE, a progressive neurodegenerative disease that develops after repeated head injuries. Jay and Chris discuss the state of head injuries in American athletics, the difference between advocating for head safety at youth and professional levels, Chris’ newest research, and much more. Episode Chapters (00:00) Intro (00:50) changes in the culture around concussions in the past two decades (02:39) padded helmet technology (03:55) concussion reporting in the NFL (10:35) Chris’ career path and concussion history (14:52) connecting with activists who haven’t themselves suffered a traumatic brain injury (17:42) SHAAKE - a new sign to identify concussions (20:53) Unions can help players advocate for safety policies (23:10) final thoughts and goodbye For video episodes, watch on www.youtube.com/@therudermanfamilyfoundation Stay in touch: X: @JayRuderman | @RudermanFdn LinkedIn: Jay Ruderman | Ruderman Family Foundation Instagram: All About Change Podcast | Ruderman Family Foundation To learn more about the podcast, visit https://allaboutchangepodcast.com/…

منذ عام واحد 45:23

MP3•منزل الحلقة

In this week's episode, we talk with Dr. Andrew Maxwell all about Dysautonomia, Postural Orthostatic Tachycardia Syndrome (POTS), and even Pediatric Acute-onset Neuropsychiatric Syndrome (PANS)!
Dr. Maxwell is a Board Certified Pediatric Cardiologist and Pediatrician who takes a particular interest in Ehlers-Danlos Syndrome, Dysautonomia, POTS, Mast Cell Activation Syndrome, and all the many other comorbidities so commonly seen in his "Pentad Super-Syndrome."
Dr. Maxwell also wrote the chapter on Dysautonomia in the book Disjointed Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders.
Check out the Show Notes for links for more information about Dr. Maxwell and his Pentad Super-Syndrome!

Show Notes: https://amybodkin.com/podcast-episode-67

For more info about Amy Bodkin, a Special Needs Consultant for parents and professionals, visit our website:
Amy Bodkin Consulting – Seeing the Possibilities through a Neurodivergent Lens because Special Needs Kids Are People Too!

70 حلقات

#Amy Bodkin EdS #Special Needs #Special Needs Children #Autism #Autitic Adult #Special Needs Homeschooling #Special Needs Consultant #Society #Parenting #Conversations #Podcasting Education

Special Needs Kids Are People Too!

S4E67: Dysautonomia, POTS, and PANS... Oh My!

Special Needs Kids Are People Too!

published منذ عام واحد

MP3•منزل الحلقة

Show Notes: https://amybodkin.com/podcast-episode-67

70 حلقات

#Amy Bodkin EdS #Special Needs #Special Needs Children #Autism #Autitic Adult #Special Needs Homeschooling #Special Needs Consultant #Society #Parenting #Conversations #Podcasting Education

All episodes

Special Needs Kids Are People Too!

1
S4E70: Autism, Vaccines, and Diets 36:37

منذ 5 أيام36:37

36:37

Autism, Vaccines, and Diets are words that have caused much controversy over the years. Everyone has an opinion, and people often feel threatened when people have different opinions from them. I hope that this episode will be a breath of fresh air that allows us to consider some possibilities that might not always be considered. But mostly, I hope this episode encourages you to see each child as an individual and to let that guide you! Check out the Show Notes for links to more resources mentioned in the episode! Show Notes: https://amybodkin.com/podcast-episode-70 For more info about Amy Bodkin, a Special Needs Consultant for parents and professionals, visit our website: Amy Bodkin Consulting – Seeing the Possibilities through a Neurodivergent Lens because Special Needs Kids Are People Too!…

Special Needs Kids Are People Too!

1
S4E69: Mast Cell Activation Syndrome 27:30

منذ 12 يومًا27:30

27:30

Mast Cell Activation Syndrome: when your body is a Mercedes living in a Ford pick-up world. Mast Cell Activation Syndrome (MCAS) is a common comorbidity for both Ehlers-Danlos Syndrome and Dysautonomia. It is often described as "being allergic to the universe." But perhaps it is best described as a Mercedes living in a Ford pick-up world. People with MCAS have bodies that need a lot of extra TLC! Avoidance of triggers is one of the most important things in supporting someone with MCAS, but it goes beyond that, it means performing regular maintenance checks on your body assuring that you maintain homeostasis Check out the Show Notes for links to more resources about Mast Cell Activation Syndrome! Show Notes: https://amybodkin.com/podcast-episode-69 For more info about Amy Bodkin, a Special Needs Consultant for parents and professionals, visit our website: Amy Bodkin Consulting – Seeing the Possibilities through a Neurodivergent Lens because Special Needs Kids Are People Too!…

Special Needs Kids Are People Too!

1
S4E68: You've Got the Power! 53:06

منذ 7 weeks53:06

53:06

You've got the power! In this week's episode, we talk with Geralyn Spiesz about Epigenetics, Neuroplasticity, Down Syndrome, Autism, and more! Geralyn Spiesz is an Occupational Therapist, author of Redefining the Reality of Down Syndrome: The Power of an Integrative Mindset , and founder of The Down Syndrome Action Plan Community. What I hope you take away from this conversation is that thanks to epigenetics and neuroplasticity, you've got the power! No matter what genes you might have been born with, your genes are NOT your destiny! We ALL have the power to influence the expression of genes through the environment we create for our bodies to live in! Whether it is dietary change, palate expanders, stress reduction, or physical exercise, it's all about supporting your child body, mind, and soul so they can grow into their best selves! Check out the Show Notes for links to more information about Geralyn Spiesz and The Down Syndrome Action Plan Community! Show Notes: https://amybodkin.com/podcast-episode-68 For more info about Amy Bodkin, a Special Needs Consultant for parents and professionals, visit our website: Amy Bodkin Consulting – Seeing the Possibilities through a Neurodivergent Lens because Special Needs Kids Are People Too!…

Special Needs Kids Are People Too!

1
S4E67: Dysautonomia, POTS, and PANS... Oh My! 45:23

منذ 8 weeks45:23

45:23

In this week's episode, we talk with Dr. Andrew Maxwell all about Dysautonomia, Postural Orthostatic Tachycardia Syndrome (POTS), and even Pediatric Acute-onset Neuropsychiatric Syndrome (PANS)! Dr. Maxwell is a Board Certified Pediatric Cardiologist and Pediatrician who takes a particular interest in Ehlers-Danlos Syndrome, Dysautonomia, POTS, Mast Cell Activation Syndrome, and all the many other comorbidities so commonly seen in his "Pentad Super-Syndrome." Dr. Maxwell also wrote the chapter on Dysautonomia in the book Disjointed Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders . Check out the Show Notes for links for more information about Dr. Maxwell and his Pentad Super-Syndrome! Show Notes: https://amybodkin.com/podcast-episode-67 For more info about Amy Bodkin, a Special Needs Consultant for parents and professionals, visit our website: Amy Bodkin Consulting – Seeing the Possibilities through a Neurodivergent Lens because Special Needs Kids Are People Too!…

Special Needs Kids Are People Too!

1
S4E66: Ehlers-Danlos Syndrome 34:03

منذ 9 weeks34:03

34:03

This week's episode is all about Ehlers-Danlos Syndrome! If you have read Fourth Wing , this is what Violet has, and it also happens to be what I and my children have! We are joined today by Dr. Kaydee Zimmern, a physical therapist specializing in pelvic floor health and Ehlers-Danlos Syndrome. I bet you didn't know those two things were so closely related! This is a great time to have Ehlers-Danlos Syndrome as there are now so many resources available that we didn't have before. And we are continuing to learn more every day! Ehlers-Danlos Syndrome is not a hopeless diagnosis. It can be difficult, but we have options to empower us to live our best life whatever that may look like. But it all starts with advocacy because YOU are worth fighting for! Check out the Show Notes for links for more information about Ehlers-Danlos Syndrome, Dr. Kaydee Zimmern, and her work at Gulf Coast Pelvic Health! Show Notes: https://amybodkin.com/podcast-episode-66 For more info about Amy Bodkin, a Special Needs Consultant for parents and professionals, visit our website: Amy Bodkin Consulting – Seeing the Possibilities through a Neurodivergent Lens because Special Needs Kids Are People Too!…

Special Needs Kids Are People Too!

1
S4E65: Freedom Pancakes for Ukraine 48:10

منذ 13 weeks48:10

48:10

In this special episode, Freedom Pancakes for Ukraine, we are breaking from our focus on Neurodivergent Healthcare in honor of the holidays! I am joined by Dr. Janice Cohn, author of The Christmas Menorahs, and Paolo Volpati-Kedra, who features prominently in Freedome Pancakes for Ukraine! At the end of the episode, I recommend that you make a tradition in your home of reading a new story about someone who was an upstander every year during the holidays! It is a great time when we are already more focused on shining light into dark places! And it is a great way to help children see that they are capable of creating change in the world! Such an empowering message that can help kids grow in their self-confidence and nurture the growth of more upstanders in the future! Check out the Show Notes for links to more information about Freedom Pancakes for Ukraine, The Christmas Menorahs, Dr. Janice Cohn, Paola Volpati-Kedra, and more resources about being an upstander! Show Notes: https://amybodkin.com/podcast-episode-65 For more info about Amy Bodkin, a Special Needs Consultant for parents and professionals, visit our website: Amy Bodkin Consulting – Seeing the Possibilities through a Neurodivergent Lens because Special Needs Kids Are People Too!…

Special Needs Kids Are People Too!

1
S4E64: No Patient Left Behind 24:24

منذ 18 weeks24:24

24:24

In No Patient Left Behind, our second episode of Season 4: Neurodivergent Healthcare, I am joined by Angela Gehrt. Angela is an Occupational Therapist working on her capstone project for her doctoral work, and the focus of her research is on improving Neurodivergent Healthcare! She had some very interesting statistics to share with us such as: - Autistic life expectancy is reduced by 16-30 years, and Autistics are more likely to die in every disease category than their non-Autistic counterparts. - Autistic people are twice as likely to use emergency departments and die after attending emergency care. - Autistic people are three times more likely to require inpatient admissions. - 80% of Autistics reported difficulty visiting a GP when needed unrelated to costs, compared with 37% of non-Autistics. - 56% of Autistics delayed seeking care because they don't feel understood. Only 13% of non-Autistics reported the same challenges. - Only 13% of physicians felt they had adequate (not good but adequate) tools and resources to serve Autistic patients. Check out the Show Notes for links to some of the research Angela cited in this episode! Show Notes: https://amybodkin.com/podcast-episode-64 For more info about Amy Bodkin, a Special Needs Consultant for parents and professionals, visit our website: Amy Bodkin Consulting – Seeing the Possibilities through a Neurodivergent Lens because Special Needs Kids Are People Too!…

Special Needs Kids Are People Too!

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S4E63: Earning the Right to Talk 50:07

منذ 19 weeks50:07

50:07

Welcome back to Season 4 of Special Needs Kids Are People Too! This entire season is going to be focused on Healthcare and Neurodivergent Healthcare specifically! There are different ways that we "earn the right to talk" about a particular subject. Sometimes we earn that right by getting a degree in that area of study. Othertimes we read a great deal and self-educate ourselves on a particular topic. However, we can also "earn the right to talk" about a particular subject through "the school of hard knocks," in other words, through life experience. Throughout this season, I will be interviewing people with degrees in relevant areas of study, but I will also be sharing from my own life experience with the very real problem of Substandard Neurodivergent Healthcare. Join me today as I start our new season off by sharing my own story and experiences with Neurodivergent Healthcare! Join us today! Show Notes: https://amybodkin.com/podcast-episode-63 For more info about Amy Bodkin, a Special Needs Consultant for parents and professionals, visit our website: Amy Bodkin Consulting – Seeing the Possibilities through a Neurodivergent Lens because Special Needs Kids Are People Too!…

Special Needs Kids Are People Too!

1
S3E62: I Wrote a Book! 33:28

منذ 42 weeks33:28

33:28

In this episode I am excited to share with you all that I wrote a book! It is called Special Needs Kids Are People Too! Seeing the Possibilities Through a Neurodiverse Lens . In the week since its official release on Amazon, my book has been #1 New Releases in both Parenting Hyperactive Children and Teaching Students with Developmental and Intellectual Disabilities (ahead of Temple Grandin's new release)! Special Needs Kids Are People Too! Seeing the Possibilities Through a Neurodiverse Lens has also appeared in the Top 100 New Releases for all new releases in the category of Education! I've told you I wrote a book, but what is my book about? Listen to today's episode to find out! And if you have already read my book, listen to today's episode to get some insights into the outcomes of Jon, Sarah, William, Anne, Nick, Emma, and Jack! Join us today! Show Notes: https://amybodkin.com/podcast-episode-62 For more info about Amy Bodkin, a Special Needs Consultant for parents and professionals, visit our website: Amy Bodkin Consulting – Seeing the Possibilities through a Neurodivergent Lens because Special Needs Kids Are People Too!…

Special Needs Kids Are People Too!

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S3E61: Interoception 31:01

منذ 44 weeks31:01

31:01

In this episode we talk all about Interoception with Whitney Whitten of Sensational Moms! Whitney is an Occupational Therapist turned Coach who likes to encourage moms to address their own sensory needs, and it all begins with Interoception! What is Interoception and how can it impact your home? Join us today and find out! Show Notes: https://amybodkin.com/podcast-episode-61 For more info about Amy Bodkin, a Special Needs Consultant for parents and professionals, visit our website: Amy Bodkin Consulting – Seeing the Possibilities through a Neurodivergent Lens because Special Needs Kids Are People Too!…

Special Needs Kids Are People Too!

1
S3E60: Kids and Electronics: Yes or No? 43:09

منذ 47 weeks43:09

43:09

In this episode we talk about Kids and Electronics: Yes or No? This is probably one of the biggest topics in parenting circles today whether you homeschool or not, whether your kids have a disability or not. And it is not an easy topic to navigate because it is one that most parents haven't experienced, at least not in the same way that their kids are experiencing technology now! What does the research really say? And what can we do to help our children remain safe and healthy? Join me today in our episode, Kids and Electronics: Yes or No? Show Notes: https://amybodkin.com/podcast-episode-60 For more info about Amy Bodkin, a Special Needs Consultant for parents and professionals, visit our website: Amy Bodkin Consulting – Seeing the Possibilities through a Neurodivergent Lens because Special Needs Kids Are People Too!…

Special Needs Kids Are People Too!

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S3E59: Q&A All About Special Needs Homeschooling 30:27

منذ 48 weeks30:27

30:27

This is the last episode of our Q&A series -- Q&A: All About Special Needs Homeschooling! We will have a few more episodes before we break for the season, but this will be the last in our Q&A series. To date, I have never done an episode just on homeschooling! So today I get the opportunity to share with you all about my journey as a homeschooler and what books and resources have influenced me! Join me today in our episode, Q&A: All About Special Needs Homeschooling! Show Notes: https://amybodkin.com/podcast-episode-59 For more info about Amy Bodkin, a Special Needs Consultant for parents and professionals, visit our website: Amy Bodkin Consulting – Seeing the Possibilities through a Neurodivergent Lens because Special Needs Kids Are People Too!…

Special Needs Kids Are People Too!

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S3E58: The Challenges of Being a Neurodivergent Woman 25:08

منذ 1 year25:08

25:08

What are the challenges of being a neurodivergent woman? We are taking a break from our Q&A series this week to address this question! Michelle Markman of ND Coach, Inc is my guest this week, and she works to empower high-masking, high-achieving women, particularly those who have been late-diagnosed or self-diagnosed autistic (or otherwise neurodivergent). So what are the challenges of being a neurodivergent woman? Well, in some ways they aren't that different from the challenges of being a woman... perhaps, as we say in the podcast, "just more so!" Join me today in our episode, The Challenges of Being a Neurodivergent Woman! Show Notes: https://amybodkin.com/podcast-episode-58 For more info about Amy Bodkin, a Special Needs Consultant for parents and professionals, visit our website: Amy Bodkin Consulting – Seeing the Possibilities through a Neurodivergent Lens because Special Needs Kids Are People Too!…

Special Needs Kids Are People Too!

1
S3E57: Q&A ACT/SAT Testing Accommodations 22:31

منذ 1 year22:31

22:31

Our next Q&A is all about ACT/SAT Testing Accommodations, a topic of great concern to those with high schoolers. Today we will be answering important questions like: Which test should my student take? How do I apply for accommodations? What kinds of accommodations could I possibly apply for? Is there anyone who can help with this process? You can ease your mind about ACT/SAT testing accommodations as I am including links to all the relevant information and necessary forms to apply for ACT/SAT accommodations in the Show Notes. I am also including a link to my Boost Packet: Planning, Organizing, Documenting Your Homeschool: The Neurodivergent Way. This is a great tool to help you document along the way so applying for these accommodations will not be so overwhelming. And if you still feel overwhelmed, you can check out my Special Needs Membership. It is a great way to get some help documenting along the way. And if you reach the high school years and still feel overwhelmed, I can walk with you through every step of the way! Join me today as I help you chart a path towards your student's future! Show Notes: https://amybodkin.com/podcast-episode-57 For more info about Amy Bodkin, a Special Needs Consultant for parents and professionals, visit our website: Amy Bodkin Consulting – Seeing the Possibilities through a Neurodivergent Lens because Special Needs Kids Are People Too!…

Special Needs Kids Are People Too!

1
S3E56: Q&A Misophonia 42:30

منذ 1 year42:30

42:30

Our next Q&A is all about Misophonia, a condition where a person experiences a decreased tolerance for certain sounds. To help us understand more about Misophonia, I have asked Doctor of Audiology Rae Stout to join me! Dr. Stout is an Autistic Audiologist that has taken a particular interest in using low gain hearing aids to help children not only cope with Misophonia but to hopefully increase their tolerance for certain sounds. Dr. Stout speaks to the fact that exposure therapy is rarely successful, but tools like low gain hearing aids that give a child control over their auditory environment can be helpful in decreasing the severity of the child's experience with Misophonia! I always say that if you want to find a truly exceptional professional in any field that you should look for an Autistic person with a special interest in that field, and Dr. Rea Stout does not disappoint!! Join me today as I talk with Dr. Rae Stout about the fascinating world of sound!! Show Notes: https://amybodkin.com/podcast-episode-56 For more info about Amy Bodkin, a Special Needs Consultant for parents and professionals, visit our website: Amy Bodkin Consulting – Seeing the Possibilities through a Neurodivergent Lens because Special Needs Kids Are People Too!…

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