EP 31. Behind the Scenes of Autism Parenthood and Perseverance

Parenting Severe Autism

Every year as I prepare for the daunting task of legal guardianship reporting, I'm reminded of the unique and enduring challenges that come with raising my son, Jacob, who lives with severe autism. This episode peels back the layers of our daily life, from bureaucratic headaches like insurance verifications and PUNS list updates to the heartache of realizing the unchanging nature of Jacob's condition. I offer a raw look into the emotional landscape of a family navigating the complex world of autism adulthood, sharing my personal struggles with a system that often feels impersonal and indifferent to the realities we face.
Celebrations in our household are different, and Jacob's 23rd birthday was no exception. Lacking the usual fanfare, we find solace in the small traditions that bring joy, despite the trials of limited family contact and the impact of health issues on our routine. The episode also ventures into the realm of social media, where our YouTube channel "Burnt From Birth" reveals snippets of our life with autism to the world, often leading to misconceptions. I open up about my husband's solo fight through the early stages of diagnosis and advocacy, inviting listeners to connect with us as we traverse the seasons of parenting a child with autism. Join us for a conversation that promises honesty, solidarity, and a window into a world that many never see.

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