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What we learn from linking data
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The NIH has launched the new Autism Data Science Initiative: https://dpcpsi.nih.gov/autism-data-science-initiative/funding-opportunities#section1, which brings questions about why linking different data sets is important. It can be done without including personal identifying information, and it should be done following ethical guidelines. If done correctly, using large datasets can answer questions relating to treatment, cause, better identification and personalized medicine for those on the spectrum. So what has linking data done for families? This week’s podcast summarizes longitudinal research that follows individuals across time, linking their information across different ages to look at factors that predict outcomes, environmental factors, and how to best support those on the spectrum.
https://pubmed.ncbi.nlm.nih.gov/40420626
https://bmcpsychology.biomedcentral.com/articles/10.1186/s40359-025-02739-4
https://pubmed.ncbi.nlm.nih.gov/40391067
135 حلقات
Fetch error
Hmmm there seems to be a problem fetching this series right now. Last successful fetch was on October 10, 2025 15:14 ()
What now? This series will be checked again in the next day. If you believe it should be working, please verify the publisher's feed link below is valid and includes actual episode links. You can contact support to request the feed be immediately fetched.
Manage episode 486434869 series 2491873
The NIH has launched the new Autism Data Science Initiative: https://dpcpsi.nih.gov/autism-data-science-initiative/funding-opportunities#section1, which brings questions about why linking different data sets is important. It can be done without including personal identifying information, and it should be done following ethical guidelines. If done correctly, using large datasets can answer questions relating to treatment, cause, better identification and personalized medicine for those on the spectrum. So what has linking data done for families? This week’s podcast summarizes longitudinal research that follows individuals across time, linking their information across different ages to look at factors that predict outcomes, environmental factors, and how to best support those on the spectrum.
https://pubmed.ncbi.nlm.nih.gov/40420626
https://bmcpsychology.biomedcentral.com/articles/10.1186/s40359-025-02739-4
https://pubmed.ncbi.nlm.nih.gov/40391067
135 حلقات
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