"We knew nothing about this..." Kristen Gray

The Rare hour with Christopher Velona

Wife, mother, advocate, and businesswoman, Kristen Gray shares her story about the heartbreaking battle into the unknown...Batten Disease.

"In my wildest of wildest fears did I ever think what it ultimately would be"

From normalcy to misdiagnosis to MRIs, Kristen Finds strength and power in her partner.

Kristen and Gordon Gray have paved the way for many doctors, physicians and pharmaceutical companies to start thinking outside the box, as both of their children fight for their lives.

Gordon Gray, a Hollywood producer, turned childhood disease advocate was able to rally some of his Hollywood friends to create an awareness campaign that catapulted Batten disease research. Truly a power couple.

There are no treatment options or cure at this time for any variant of Batten disease. It will leave your children blind, immobile and cognitively impaired, and ultimately, dead before a full life of normalcy. Kristen reveals the one hard lesson learned..." research, research, research!

Listen on as the co-founder of Charlotte and Gwenyth Gray Foundation Refuses to listen to the old ways as she and her husband move science forward into the Gene therapy space to help their girls and many others in the process.

To find out more about the Charlotte and Gwyneth Gray Foundation please visit:

http://www.curebatten.org/

http://www.thegrayacademy.org/

Facebook:

Curebatten

Thegrayacdemy

Instagram:

@curebatten

To reach Kristen directly:

[e-mail]