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Best of the 2023 Nano-rare Patient Colloquium
Manage episode 423145986 series 3349924
We’re recapping the 2023 Nano-rare Patient Colloquium in this special “Best of” episode. For the Colloquium, we gathered the nano-rare community under one single roof for a full day of presentations and panels with experts, partners, supporters, and patients. So, we are bringing some of the top moments directly to your speakers. Discover the origins and aspirations of n-Lorem and Columbia University's Silence ALS initiative, visualize the journey of a nano-rare patient with the help of an emotional story told by a loved one, and imagine a future where commercial drug discovery organizations can focus on the world’s rarest diseases and more all in this one episode. To access the entire event, visit https://www.nlorem.org/nano-rare-patient-colloquium-2023/
Register for the 2024 NRPC: https://www.nlorem.org/2024-nano-rare-patient-colloquium-registration-form/
66 حلقات
Manage episode 423145986 series 3349924
We’re recapping the 2023 Nano-rare Patient Colloquium in this special “Best of” episode. For the Colloquium, we gathered the nano-rare community under one single roof for a full day of presentations and panels with experts, partners, supporters, and patients. So, we are bringing some of the top moments directly to your speakers. Discover the origins and aspirations of n-Lorem and Columbia University's Silence ALS initiative, visualize the journey of a nano-rare patient with the help of an emotional story told by a loved one, and imagine a future where commercial drug discovery organizations can focus on the world’s rarest diseases and more all in this one episode. To access the entire event, visit https://www.nlorem.org/nano-rare-patient-colloquium-2023/
Register for the 2024 NRPC: https://www.nlorem.org/2024-nano-rare-patient-colloquium-registration-form/
66 حلقات
كل الحلقات
×1 Q&A - 2024 Nano-rare Patient Colloquium Recap 24:22
1 Best of the 2024 Nano-rare Patient Colloquium 58:13
1 Susannah's Progress: Two Years of ASO Treatment with Dr. Jennifer Bain and Luke Rosen 40:38
1 Sneak Peek of the 2024 Nano-rare Patient Colloquium 41:44
1 The Building Blocks of What's Possible with David Butler, Ph.D. 29:50
1 Ion Channel Mutations: The Complexities of Treatment 30:16
1 Behind the ASO Design and Discovery with Konstantina Skourti-Stathaki, Ph.D. 27:33
1 Best of the 2023 Nano-rare Patient Colloquium 36:51
1 The Hurdles of Insuring Patients with Nano-rare Mutations with Alan Lotvin, M.D. 50:51
1 Anna’s Story of Hope and Help: FUS-ALS with Sonja Kämpfer and Dr. Neil Shneider 43:06
1 Mostyn’s Story: Mother’s Day Special with Zoe Hummel 50:06
1 Physicians and Institutions Transform the Lives of Nano-rare Patients with Olivia Kim-McManus, M.D. 48:53
1 Sharing Hope Through Storytelling & Connection with Shanna Tolbert 43:08
1 Our Mission is Personal with Sarah Glass 40:54
1 Best of the 2023 Nano-rare Patient Colloquium 39:02
1 Inheriting Huntington’s Disease and Aspiring to Prolong Lives with Jeff Carroll 38:43
1 Living a Longer, Healthier, and More Fun Life with Chip Wilson 1:00:16
1 Autopilot: The Autonomic Nervous System 22:04
1 Better Health, Brighter Future for Rare with Dan Curran 29:52
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