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Q&A - 2024 Nano-rare Patient Colloquium Recap
Manage episode 456134496 series 3349924
المحتوى المقدم من n-Lorem Foundation (Dr. Stan Crooke, Amy Williford, Kim Butler, Andrew Serrano, Jon Magnuson, and Kira Dineen), N-Lorem Foundation (Dr. Stan Crooke, Amy Williford, Kim Butler, Andrew Serrano, Jon Magnuson, and Kira Dineen). يتم تحميل جميع محتويات البودكاست بما في ذلك الحلقات والرسومات وأوصاف البودكاست وتقديمها مباشرة بواسطة n-Lorem Foundation (Dr. Stan Crooke, Amy Williford, Kim Butler, Andrew Serrano, Jon Magnuson, and Kira Dineen), N-Lorem Foundation (Dr. Stan Crooke, Amy Williford, Kim Butler, Andrew Serrano, Jon Magnuson, and Kira Dineen) أو شريك منصة البودكاست الخاص بهم. إذا كنت تعتقد أن شخصًا ما يستخدم عملك المحمي بحقوق الطبع والنشر دون إذنك، فيمكنك اتباع العملية الموضحة هنا https://ar.player.fm/legal.
Join Stan Crooke, n-Lorem founder, CEO, and host of the Patient Empowerment Program Podcast, alongside Amy Williford, Sr. Director of Communications and Donor Relations, for a special episode.
In this post-colloquium Q&A, Stan recaps the 2024 Nano-rare Patient Colloquium and the progress n-Lorem has made as the organization nears its 5-year anniversary, shares his candid reflections on the event, and dives into additional thoughts and questions that weren’t covered.
Do you have additional questions? Email podcast@nlorem.org.
Question Bank:
- 2:15 How do you think the event went this year?
- 6:05 Were observations of benefit expected in patients so quickly?
- 9:47 What do you expect the number of patients treated to be next year?
- 10:57 Do you have a message to supporters?
- 12:30 Were there any disappointments from the colloquium?
- 13:21 What are the most important things that n-Lorem has learned this year?
- 16:13 Do you think n-Lorem’s processes will be outlined every year at the event?
- 18:05 How is AI incorporated at n-Lorem?
- 19:10 Does your recently announced deal with GondolaBio reflect the sustainability strategy discussed at the event?
- 20:53 n-Lorem is celebrating 5 years in 2025. Did you expect the foundation to be where it is today?
- 21:28 Does n-Lorem plan to expand into Europe and elsewhere?
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