Ep 12: From Hospital to Home: What They Don't Tell You (and what we've been doing the last six months!)

Caffeinated Caregivers

We’re back and ready to dive into the community complaint department! In this episode, we catch you up on our six-month hiatus (spoiler: it’s been a mix of zero-fun medical stuff and a few bright moments). Erica’s disappointed with Alyssa’s coffee fail, but we’re making up for it with real talk about the challenges caregivers face, from feeling unprepared when heading home to navigating medical machines and interventions. Plus, we’re sharing an exciting research opportunity for caregivers who want to make an impact. Tune in for relatable rants, practical tips, and a call to action for caregivers to support each other and help close the gaps!
In this episode:

[00:00:00] Intro
[00:00:45] Erica expresses her disappointment with Alyssa (she didn't bring coffee)
[00:02:30] Alyssa and Erica address the elephant in the room: where we've been for the last six months
[00:09:45] How Alyssa found out that there's a complex care team available at her daughter's hospital
[00:15:42] An exciting research opportunity for caregivers who have the bandwidth to share their experience
[00:19:53] How shockingly unprepared most caregivers feel when going home for the first time and why we aren't given information we often need
[00:27:57] When it's too much information and when it might not be enough
[00:34:27] Why we need beeter conversations on medical machines and interventions before going home
[00:40:58] Why you NEED to do that sleep study inpatient
[00:47:45] How caregivers could support each other in these situations
[00:51:00] What you can do to address some of these gaps!
Apply for the SafeCare@Home4Kids research study: https://bit.ly/SafeCareStudy
For the transcript, our blog, links, and more, visit our website: https://www.caffeinatedcaregivers.com/podcast/
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Thanks friends! Talk soon!