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MS Warrior, Brain Surgery Survivor, Trigeminal Neuralgia Warrior, Filmmaker, CEO. Join me as take on this wild journey called life. Living with Chronic Illness: It's not just about the tough days, but also about the triumphs, big and small. I'll share my stories, the highs, the lows, and everything in between. From personal struggles to unexpected joys, it's all here, raw and unfiltered. Searching for Grace: How do we find grace in the chaos? Together, we'll explore strategies to cope, ways ...
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Send us a Text Message. In this episode, I open up about my journey with multiple sclerosis, starting from my diagnosis story to where I am today. I share the early symptoms I experienced, the shock of the diagnosis, and how I’ve gradually moved towards acceptance and advocacy. I talk about the importance of giving ourselves grace and making room f…
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Embracing Grace: The Darkness and Light, Navigating Emotions with MS
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Send us a Text Message. In this episode, I open up about my feelings of resentment, anger, and bitterness towards others who complain about their problems. I discuss the shame and secrecy that often surround these emotions and the ongoing nature of living with MS. While I strive to be positive and hopeful, I share my struggles with the darkness and…
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Hope on the Horizon: Exploring CAR T Cell Therapy with Kyverna Pharmaceuticals
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25:47
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Send us a Text Message. In this episode, I’m thrilled to share my recent trip to San Francisco, where I was invited by Kyverna Pharmaceuticals to learn about their pioneering CAR T cell therapy, currently in clinical trials. This therapy holds incredible promise for those of us living with multiple sclerosis and other chronic illnesses. My visit le…
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Navigating Long COVID and POTS: A Conversation with Katie Cavan
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Send us a Text Message. In this episode, Katie Cavan shares her journey with long COVID and POTS, discussing the challenges of securing a diagnosis and managing a range of debilitating symptoms. She emphasizes the importance of self-advocacy in the face of skepticism and setbacks. Katie opens up about the struggle for validation and the need for su…
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When Bob Iger Replied: Unpacking the New Disney DAS Rules
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Send us a Text Message. In this episode, I delve into the recent changes to Disney's Disability Access Service (DAS), sharing my personal experiences and frustrations. Despite facing a lack of empathy from a cast member during a Zoom interview and an unhelpful response from guest services, I remain resolute in advocating for change. I recount the s…
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Optic Neuritis: Coping with the Irreversible Damage of MS
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Send us a Text Message. In this episode, I open up about my recent health struggles and the profound emotional toll they've taken on me. Living with an incurable disease has been incredibly challenging, especially coming to terms with situations that can't be fixed or where answers are elusive. I share my personal journey with optic neuritis, the c…
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Searching for Grace within My Fertility Journey
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Send us a Text Message. In this episode, I open up about my personal fertility journey, sharing the challenges and emotional decisions I've faced. From freezing my eggs to navigating IVF, and the complexities of finding a sperm donor, I discuss it all. I'll also touch on how my health has influenced my path and the tough choices I've had to make. J…
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Unlocking First Class: Points, Miles, and Travel Tips
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Send us a Text Message. In this episode, I reflect on my three-month podcast journey and the joy it has brought me. I share my recent travel experiences, revealing how I managed to fly first class for most of my flights using points and miles. I emphasize the importance of understanding the points game and provide valuable resources and tips for ma…
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From Pleasing to Peace: Navigating MS and Relationships at 40
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Send us a Text Message. In today's episode, I dive deep into how turning 40 has reshaped my relationships and the way I navigate friendships, especially in light of my journey with multiple sclerosis (MS). I'll share the challenges I've faced in maintaining these connections and why setting boundaries has become essential for my well-being. We'll e…
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Finding Light: My Journey Beyond Sexual Assault
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Send us a Text Message. As I dive into the latest headlines, I'm hit hard by the news of Harvey Weinstein's overturned verdict. It's a gut-wrenching reminder of the uphill battle survivors face. Sharing my own story of assault, I confront the power imbalances and systemic hurdles within the entertainment world. Through the pain, I find solace in th…
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Embracing Resilience: Conversations with Hillary about MS and Motherhood
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Send us a Text Message. Come along with me for a heartfelt conversation with Hillary Lofton-Mosley, where we dive into her journey with multiple sclerosis (MS). From the whirlwind of diagnosis to unexpected surprises like a surprise pregnancy, Hillary shares her story with honesty and a sprinkle of humor. We'll laugh, we'll cry, and we'll navigate …
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Shared Courage: My MS Journey Through My Sister's Eyes a Conversation w/ Dr. Alisha J. Hines
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Send us a Text Message. In this heartfelt chat, my sister Alisha and I dive deep into the impact of my MS diagnosis on our sisterhood. We go back in time and reflect on the rollercoaster of emotions we've experienced, from denial to acceptance, and how it's reshaped our relationship. Through laughter and tears, we share the little moments of unders…
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Send us a Text Message. In this episode, I share a journey that's close to my heart—MS Awareness Month. It's a time filled with activities and events I'm deeply involved in, all aimed at raising awareness for Multiple Sclerosis (MS), a condition that's part of my life. I'm incredibly thankful for the support I receive; it means the world to me. Yet…
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Catching Up With Lauren Thomas Living and Advocating with Narcolepsy Cataplexy
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Send us a Text Message. Curious about life with narcolepsy? Join me in an eye-opening conversation with my dear friend Lauren Thomas. We unpack her journey living with Narcolepsy Cataplexy, from navigating treatment to her unforgettable experience speaking at the White House. Tune in as we explore the importance of advocating for sleep equity and t…
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Disney Races, Disney Parks, & Some Bravo w/ Kyle Stephen
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Send us a Text Message. In this chat, I get real with my friend Kyle about our wild ride with multiple sclerosis and how we tackled the Run Disney Marathon together. Picture this: we met during those crazy pandemic times, thanks to a friend who thought we’d hit it off – and boy, were they right. Kyle spills the beans on what went down when he first…
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Send us a Text Message. In this episode, I open up about the silent battles with MS pain and its sneaky way of messing with friendships and daily life. I touch on the tricky bits of explaining what this pain feels like and the extra stuff you've got to juggle when you're living with a chronic illness. It's a bit about the loneliness and the guilt t…
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Brain Surgery, Trigeminal Neuralgia, Firing My Doctor
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Send us a Text Message. In this episode, I'm letting you in on a journey that turned my world upside down. It's about my fight with trigeminal neuralgia, a term that was as foreign to me as the unimaginable pain it brought into my life. This isn't just a story about physical pain, though. It's about hitting roadblocks when you're desperately seekin…
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Happy V Day!, Dating with MS, Dating in Your 40s
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Send us a Text Message. Navigating the dating world in 2024 with a chronic illness is like embarking on an unpredictable journey, where every interaction feels like stepping onto uncharted territory. Gone are the days of swiping right for me; now, it's about finding genuine connections in real-life encounters. Deciding when to reveal my illness is …
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Barely Making It in 2024, When You Know Something's Wrong But No Doctors Will Listen....
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Send us a Text Message. Just wrapped up the first month of 2024, and honestly, it's been a struggle. After enduring 17 long months filled with pain and feeling like no one really got what I was going through, I've finally gotten some answers. But now, I'm left wondering, "What comes next?" It's like standing at a crossroads after a long, tiring jou…
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Send us a Text Message. Welcome to my very first podcast episode! Who am I? I'm just like you – someone navigating the unpredictable waves of life but with a little twist. I live with a chronic illness, a companion that's as challenging as it is enlightening. In this debut episode, I'm throwing open the doors to my world, inviting you to join me on…
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