أفضل بودكاسات Tetralogy Of Fallot (2024)

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Terminating a wanted pregnancy led to advocacy. Riata shares her story of her baby Riana's diagnosis of Tetralogy of Fallot and AVSD heart defect. 1:12:57

15d ago1:12:57

1:12:57

Riata shares her story of her baby Riana and the diagnosis of Tetralogy of Fallot and Atrioventricular septal defect (AVSD, a heart defect) and T21. Riata was 29 at the time of this first pregnancy. She had to travel for care, due to living in a very rural part of Wyoming. Riata wishes to share her story to remind those opposed to abortion that abo…

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From Diagnosis to Advocacy: The Brave Little Hearts South Africa Story 45:37

2d ago45:37

45:37

Send us a text What does it take to recognize the early signs of congenital heart defects (CHD) in a newborn? In this emotionally charged episode of "Heart to Heart with Anna," we welcome Raadhiyah Matthews, who recounts her harrowing journey with her daughter Thaakirah. From the initial dismissals by medical professionals to the profound struggles…

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To tell or not to tell - when to share your TFMR story 26:19

4d ago26:19

26:19

“How will I know when I’m ready to share my TFMR story and where and how should I share it?” We go into when and how and where you could decide to tell or NOT tell your story of ending your precious pregnancy for health reasons in this episode. SPONSORED BY THE TFMR GRIEF CIRCLE PROGRAM, ASCEND: If you are a bereaved TFMR parent looking for group g…

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Unexpected Diagnoses: DiGeorge (22q11.2 deletion) Syndrome in the Lawrence Family 34:58

8d ago34:58

34:58

Send us a text What would you do if you suddenly discovered that multiple members of your family were living with an intricate genetic condition? Join us for a heartfelt conversation with Regina Lawrence as she opens up about her family's journey with DiGeorge syndrome (a.k.a. 22q11.2 deletion syndrome). From the moment they learned about Aubrey's …

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Discovering a Myocardial Bridge at 65: Jeff's Journey to Heart Health Advocacy 32:15

15d ago32:15

32:15

Send us a text Have you ever ignored a small discomfort only to realize it was something far more serious? Join us on "Heart to Heart with Anna" for an eye-opening conversation with Jeff, the creator and host of a non-profit podcast network, who discovered a congenital heart defect called a myocardial bridge at the age of 65. Jeff recounts his terr…

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From Heart Block to Myotonic Dystrophy: A Survivor's Tale 33:58

1M ago33:58

33:58

Send us a text What if your heart's rhythm was out of sync from birth, yet you persevered to defy medical odds? Join us as Gwenyth Murphy, a resilient second-generation congenital heart defect survivor, shares her compelling journey of managing complete heart block and other heart conditions. From coping with an abnormally low heart rate as a child…

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Navigating Life with HLHS and Marfan Syndrome: Rachael's Powerful Story 32:12

1M ago32:12

32:12

Send us a text Discover the remarkable resilience of Rachael Gott, our extraordinary guest born with hypoplastic left heart syndrome (HLHS). Despite her condition remaining uncorrected, Rachel has navigated a complex medical journey, including ten cardiac ablations and two device implants, all while avoiding open-heart surgeries. Rachael also faces…

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Journaling & writing to honor all our losses and babies. Carmen Grover, author of A Diary to My Babies, shares her story of 5 separate miscarriages and 2 TFMRs. 46:47

1M ago46:47

46:47

Carmen Grover is mom to 11 babies, 4 earthside and 7 in her heart. These are their names in order: Amity, Will, Kaia, Baby G, Case, Maelie, Butterfly Baby, Jude, Aida, Zach, and Charlotte. She is the author of A Diary to My Babies and the journal companion to that grief memoir, A Diary to Our Babies. Two of her losses have been to TFMR and she's co…

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Chapter 10: Life Lessons from Congenital Heart Defects: Stories of Hope and Resilience 35:54

1M ago35:54

35:54

Send us a text What happens when resilience meets a congenital heart defect? Join us as we uncover the extraordinary journeys of women who have turned their medical challenges into stories of hope and triumph. Begin with Emily Falcon's deeply moving "A Letter to my Younger Self," where she offers wisdom and reflections that will resonate with anyon…

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Chapter 9 of "The Heart of a Heart Warrior" Featuring Heart Warrior Authors 47:06

2M ago47:06

47:06

Send us a text How do heart warriors find incredible strength amidst life's most challenging moments? In this episode of "Heart to Heart with Anna," we bring you deeply touching and empowering stories from individuals who have triumphed over congenital heart defects (CHD). Join us as Megan Tones sets the stage with an introduction to Chapter 9, fol…

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When TFMR is for YOUR health. Marie-Laure shares how she lost her baby Juliette to early onset preeclampsia. 1:13:07

1M ago1:13:07

1:13:07

When TFMR is for YOUR health, also called Termination for Maternal Health or Termination for the Pregnant Person’s Health, it can bring an extra layer of survivor’s guilt. Marie-Laure shares how she lost her baby Juliette to early onset preeclampsia with severe features and IUGR (intrauterine growth restriction). Her symptoms became more pronounced…

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"The Heart of a Heart Warrior" Chapter 8 Featuring Megan Tones and Julie Kerr 42:01

2M ago42:01

42:01

Send us a text Ever wondered how a heartfelt community can transform lives through stories and shared experiences? Join me on this special episode of "Heart to Heart with Anna" as I express my gratitude for the overwhelming birthday wishes from the congenital heart defect community. You'll be introduced to the latest literary gem from Baby Hearts P…

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Termination for anencephaly. Samantha explains how this loss has impacted her relationships and spirituality. 35:53

2M ago35:53

35:53

Samantha is a TFMR mom who lost her second daughter to anencephaly at 17 weeks pregnant. She came on today to share how this great loss has shifted her relationships and beliefs. Resources mentioned: 1. ASCEND TFMR Grief Circle - If you are a bereaved TFMR parent looking for group grief support, I invite you to check out our upcoming grief circles …

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Heart Warrior Transformations: From Challenges to Creative Triumphs 28:11

2M ago28:11

28:11

Send us a text Have you ever wondered how living with a congenital heart defect can shape one's life journey? This week, we’re diving into the remarkable stories of heart warriors, those extraordinary individuals who navigate life with congenital heart defects. I'm Anna Jaworski, and in this episode, we explore the powerful metaphor of transformati…

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Navigating Parenthood with a Congenital Heart Defect During Covid-19: Amelia Woods' Journey 30:52

3M ago30:52

30:52

Send us a text What happens when you're expecting a baby with a congenital heart defect during a global pandemic? Join me, Anna Jaworski, as I sit down with Amelia Woods, a courageous heart mom who faced this exact challenge. Amelia shares the emotional rollercoaster of managing her son Henderson's dextrotransposition of the great arteries (d-TGA) …

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A book of TFMR stories & why these stories NEED to be told w/ Ale Muñoz, co-author & editor of Flowers in Our Womb 15:58

2M ago15:58

15:58

Ale Muñoz, co-author and editor of TFMR story anthology “Flowers in Our Womb” shares the inspiration behind this book and why sharing your own story of TFMR pregnancy loss can be so transformative. Find Flowers in Our Womb on Amazon in Kindle (e-book), paperback, and hardcover https://a.co/d/5jAa5eF Resources mentioned: 1.“Releasing a Wanted Pregna…

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Navigating Romantic Life with a Heart Condition: Insights from Dr. Corinne Smorra 38:41

3M ago38:41

38:41

Send us a text What happens when your heart condition becomes part of your dating narrative? Today on Heart to Heart with Anna, we welcome back Dr. Corinne Smorra, a psychotherapist and adult living with congenital heart defects (CHD). Dr. Smorra opens up about her personal journey with truncus arteriosus and sheds light on the myths and misconcept…

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James Robinson's Emotional Odyssey: Love and Loss in a Heart Family 44:11

3M ago44:11

44:11

Send us a text What happens when your entire world is defined by hospital walls and medical jargon? On "Heart to Heart with Anna," we share the poignant and raw journey of James Robinson, a father who walks us through the emotional highs and profound lows of raising his son Nadav, who was born with a congenital heart defect known as single ventricl…

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Back to work in high-risk maternal and perinatal postpartum healthcare after TFMR with Alissa, mother to Seamus 42:26

3M ago42:26

42:26

Alissa shares how she got a “grey” diagnosis (a term for a condition that could be survivable through fatal, on a spectrum of outcomes) for her baby in her second trimester which led to a decision to end her wanted pregnancy. As a postpartum and high-risk NICU and PICU healthcare worker herself, she felt that her prior knowledge and vicarious lived…

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Heartfelt Battles to Artistic Revelations with Amy Milz 31:08

4M ago31:08

31:08

Send us a text Amy Milz opens her heart to us—quite literally—in a candid recount of her life as a congenital heart defect survivor. With grace and vulnerability, she takes us through the paces of her medical odyssey, from the relentless advocacy of her mother to her personal victories in the operating room. Each scar tells a story of resilience an…

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Mother's Day Reflections: The Valor and Vitality of Heart Moms 26:56

4M ago26:56

26:56

Send us a text When Hope's first breaths were intertwined with the whispers of uncertainty, my world changed. As a heart mom, each Mother's Day is not just a celebration but a milestone, reflecting the grit and grace it takes to raise a child with a congenital heart defect. Join me, Anna Jaworski, in an episode where we explore the deep emotional l…

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The Courageous Chronicle of Hope: From Heart Surgery to Self-Discovery 34:29

4M ago34:29

34:29

Send us a text When my daughter Hope graced the podcast with her presence, her story wasn't just a chronicle of living with a single ventricle heart at 29—it was a profound testament to her strength amid her gender transition. Our conversation unveils the seamless integration of her heart health with her journey of self-discovery, all while providi…

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Ending a wanted pregnancy for T21. Plus IVF and pregnancy after loss. Becky shares her story 1:08:22

4M ago1:08:22

1:08:22

Becky shares her story of IVF and embryo loss followed by TFMR for Down’s Syndrome. After all the fertility challenges, she was able to get pregnant again with what is currently a healthy pregnancy. Listen in to her journey through pregnancy after TFMR and how she lives with grief and hope at the same time. Resources mentioned: The TFMR Support Cir…

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Embracing Life's Pulse Amidst HLHS and PLE Hurdles with Hollie Stephenson 36:18

5M ago36:18

36:18

Send us a text Witnessing your child's bravery and resilience as they navigate a life-altering condition like hypoplastic left heart syndrome (HLHS) is both harrowing and inspiring. Hollie Stephenson joins Anna to share the profound story of her son Tom, who not only fought through the early challenges of HLHS but also the complex battle with prote…

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Healing through story & body practices after TFMR, fertility loss, recurrent miscarriage and stillbirth. Jenn Hepton shares her wisdom with us. 58:21

4M ago58:21

58:21

Jenn Hepton, parenting coach and founder of Motherhood Redefined + Loss in Transition shares her story of losing twins to TFMR, her other fertility and miscarriage losses and stillbirth of baby Loey. Even through all these tragic losses, Jenn shares light and healing through EFT, the "T.I.M.E. technique" and hypnobreathwork - practices she has used…

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Navigating the Emotional Landscape of Raising Children with Congenital Heart Defects 39:06

5M ago39:06

39:06

Send us a text When your child's heartbeat is a symphony laced with irregularities, every moment becomes a measure of uncertainty. This is the world heart moms like myself, Anna Jaworski, and my guest Kelsi Rogers live in every day. Join us as we peel back the curtain on the mental marathon of raising children with congenital heart defects (CHD). O…

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T18 diagnosis & abortion for medical reasons and grieving in a time of collective grief and genocide. Liz shares her story. 48:02

5M ago48:02

48:02

Liz tells her story of receiving an Edward's Syndrome (also known as T18) diagnosis and coming up against restrictive abortion laws and little understanding in the abortion space for her pregnancy loss. She also shares her experience with grieving during a time of massive loss with the Palestinian genocide. Resources mentioned: The TFMR Support Cir…

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Heart Mom Kelsi Rogers on Jett's Electrical Problems with His Heart 49:25

5M ago49:25

49:25

Send us a text This episode of "Heart to Heart with Anna" features a very special heart mom. Kelsi Rogers talks about the surprising circumstances around her son's heart condition. Born with an electrical problem in his heart, Jett has already faced life-and-death situations several times in his short life. Not even three years old yet, he has unde…

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An Author for CHD Adults with Learning Disabilities: Deanna Altomara 58:07

6M ago58:07

58:07

Send us a text As an author myself, I understand the power of stories to heal and inspire. That's why I'm thrilled to introduce Deanna Altomara, who created "Chrysalis," a book to help people facing open-heart surgery. Born with a congenital heart defect herself, Deanna understands what it means to have had open-heart surgery. Deanna's tale is a te…

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Shattering Stereotypes in the World of Down Syndrome and Congenital Heart Defects 1:06:42

6M ago1:06:42

1:06:42

Send us a text When Ellen Boyer's voice joins the conversation, the room lights up with an array of heartfelt stories and powerful messages. Together, we celebrate World Down Syndrome Day by shattering stereotypes and trumpeting the accomplishments of those with Down Syndrome. From the awe-inspiring feat of Chris Nikic, the first athlete with Down …

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Ellen Boyer and World Down Syndrome Day 2024 & Volume Two: Endurance! 1:02:02

6M ago1:02:02

1:02:02

Send us a text When Ellen Boyer graced our show with her story of love and resilience, it was clear that her daughter Brett, who blessed the world with her presence despite Down syndrome and a congenital heart defect, has sparked a legacy that transcends every stereotype. Through the Brett Boyer Foundation, Ellen's dedication to challenging limitat…

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Learning about Anesthesia During Ablations & Volume Two! 41:07

6M ago41:07

41:07

Send us a text In this episode of Heart to Heart with Anna we welcome Frank Jaworski back to the program. Frank shares information about anesthesia when patients go to the electrophysiology lab (EP lab), especially when they need to undergo an ablation. Frank is a certified, registered nurse anesthetist (CRNA) and he has been delivering anesthesia …

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Robin shares her TFMR for a giant omphalocele story & TTC (trying to conceive) again after loss 1:00:56

6M ago1:00:56

1:00:56

Robin Imholte, a TFMR mom and mom to a rainbow baby born after loss, tells her story of her baby's giant omphalocele diagnosis, a condition where organs are developing (or very poorly developing) outside of the body cavity. She shares her struggle with TTC (trying to conceive) after the death of her baby Ellie. Resources mentioned: The TFMR Support…

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Embracing the Heartbeat of Motherhood: Meagan Houpt’s Adoption Journey 1:05:45

7M ago1:05:45

1:05:45

Send us a text When Megan Houpt made the heart-wrenching decision to pursue adoption over pregnancy due to her heart condition, it struck a chord with me as a heart mom. Together, we unfold her narrative in this episode, navigating the complexities of adoption with a CHD. From the intricate dance of home studies to the emotional synergy with a birt…

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Resilience in Motion: The Unseen Struggles of Adult Life with Congenital Heart Defects 1:00:01

7M ago1:00:01

1:00:01

Send us a text Navigating life with congenital heart defects (CHD) is a journey of resilience and emotional fortitude. As I converse with my fellow heart mom, Rita Scoggins, we unearth the layers of complexity that come with raising adult children affected by CHD. This episode goes beyond the clinical; it’s an intimate foray into the emotional and …

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Threads of Resilience Sewn by Heart Moms and Their Children with CHDs 58:22

7M ago58:22

58:22

Send us a text Navigating the torrent of emotions that come with being a heart mom to an adult child, Rita Scoggins and I, Anna Jaworski, unfold the layers of our unique journey. Our intimate conversation traverses the evolution of care, from the hands-on nurturing of our children's younger years to the complexities of supporting their maturity and…

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Sex and Intimacy after TFMR w/ Kate Carson 1:02:04

7M ago1:02:04

1:02:04

Sex and intimacy after a traumatic baby loss/pregnancy loss can be HARD, and can create opportunities for healing. Kate Carson, baby loss coach, shares FIVE impediments to intimacy after TFMR pregnancy loss and some beautiful tools and practices to gently come back into your body and sensuality. Resources mentioned: 1st Program opportunity! Join Ka…

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Heart Month News February 2024 and an Audiobook Surprise! 43:36

7M ago43:36

43:36

Send us a text This episode of Heart to Heart with Anna involves news regarding Heart Month 2024. In this episode, you’ll learn about who our guest next week will be, how Congenital Heart Defect Awareness Day came to be and what it has evolved to. You’ll also learn about how Baby Hearts Press, a publishing company devoted to the CHD community, has …

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Are you isolating in the grief of TFMR pregnancy loss? 19:15

7M ago19:15

19:15

Are you isolating in the grief of TFMR pregnancy loss? Listen to hear about 3 reasons WHY you may be isolating and how to care for yourself in this isolating experience. Resources mentioned: Learn more and apply to join the upcoming TFMR grief circle program Ascend here: https://www.thetfmrdoula.com/ascend-apply My free Facebook group for terminati…

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Enriching Lives with CHD Support Networks and Healing Stories 47:54

8M ago47:54

47:54

Send us a text Embark with us as we illuminate the enduring pulse of Hearts Unite the Globe, the non-profit championing an array of deeply impactful podcasts. From the heartfelt dialogues of Heart to Heart with Anna to the comforting echoes of Bereaved but Still Me, we're uniting voices across the congenital heart disease (CHD) community. Our missi…

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From Manuscript to Masterpiece: Tales of Tenacity and Triumph 47:27

8M ago47:27

47:27

Send us a text Ever wonder about the emotional odyssey of creating a book that captures the essence of human resilience? My co-editor Megan Tones and I, Anna Jaworski, take you on the intimate trek behind "The Heart of a Heart Warrior," from the flicker of an idea to the jubilance of publication. Our conversation unwraps the passion and dedication …

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Embracing Healing: The Synergy of Functional Medicine, Aromatherapy, and Spirituality 56:14

8M ago56:14

56:14

Send us a text Have you ever felt the tug of curiosity towards an approach to mental health that strays from the conventional path? Today, I'm thrilled to welcome Valerie Chavez MD and Ryan Hunter to share their insights on functional medicine's transformative role in mental health care, especially for those touched by congenital heart defects. Tog…

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Uniting Hearts: A Decade of Hope, Support, and Volunteerism 21:10

8M ago21:10

21:10

Send us a text As I sit back and reflect on Heart to Heart with Anna in the year 2023, I want you to celebrate with me, Anna Jaworski, as we mark a milestone of connection and growth within the congenital heart defect community. From the early days on Voice America to our move to Blog Talk Radio and beyond, we've weathered sponsorship storms and em…

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Finding Hope Amidst Long Q-T Syndrome: Jackie Renfrow's Journey 33:57

9M ago33:57

33:57

Send us a text Imagine living in a family where sudden deaths were a tragic norm. That's the reality heart mom Jackie Renford faced before the fateful identification of Long Q-T Syndrome, a genetic heart condition, in her family. Her misdiagnosis and the subsequent loss of her son and daughter have inspired her to become an advocate for early detec…

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Getting Through the Holidays with Love and Grief 21:16

9M ago21:16

21:16

Grief can be especially hard around the holidays and through the new year with expectations to be "joyful" and "cheerful." In this episode I answer questions from other TFMR parents in the community about getting through the holidays. You'll hear 4 main tips PLUS an explanation of "Grieving in 4D." This episode was originally recorded as a live vid…

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Battling Congenital Heart Defects: The Extraordinary Stories of Emily Falcon and Mabel's Friendship, Advocacy, and Resilience 32:37

10M ago32:37

32:37

Send us a text How does a young child learn to fight, to survive, and even thrive when they're born battling a congenital heart defect? Join us as we journey through the inspiring life stories of Emily Falcon and Mabel, two extraordinary women who refused to let their heart conditions define them. Emily, born with the rare ALCAPA--Anomalous Origin …

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Twin loss and making memories for TFMR for T21 - Lia's story 45:04

10M ago45:04

45:04

After losing one baby early into a twin pregnancy, Lia then received a poor prenatal diagnosis of T21 (Down Syndrome) with her surviving twin. She recounts how she made memories and connections even in the hardest time between diagnosis and decision and ending her wanted pregnancy. And to join our upcoming TFMR support group program, Ascend apply h…

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The Biggest Thing I've Learned in the Grief of TFMR 18:40

11M ago18:40

18:40

On letting others be wrong about you. Important in the grief of a termination pregnancy loss. Listen in to hear how this one practice has helped my grief as a TFMR mom. And you are invited to join us in our upcoming TFMR Grief Circle program, Ascend. Learn more and apply here: https://www.thetfmrdoula.com/ascend-apply And come and join us in the fr…

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Exploring Functional Medicine: Harnessing the Power of Essential Oils and Holistic Health Approaches 53:53

12M ago53:53

53:53

Send us a text Have you ever considered how your lifestyle choices could be affecting your health? Ever wondered about the benefits of essential oils or how to improve your gut health? Then you're in the right place. In a riveting discourse with renowned Valerie Chavez, MD, and Ryan Hunter, we delve into the heart of Functional Medicine. Together, …

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A-Kid-Again Family 48:15

1y ago48:15

48:15

Send us a text Have you ever wondered about the strength that it takes to parent a heart warrior child? What does the journey of raising a child with a congenital heart defect look like? Meet Alison and Brian Blankenship, parents to two children, one of whom is a heart warrior named Ian. Ian was born with a critical congenital heart defect, and his…

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Tetralogy Of Fallot بودكاست

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