Navigating Life with Hypermobile Ehlers-Danlos Syndrome: Lauren Brown's Journey

Zebra Talks: Living Your Best Bendy Life

In this episode of Zebra Talks, host Dr. Libby Hinsley discusses the challenges and experiences of living with hypermobility syndromes with guest Lauren Brown. Diagnosed with hypermobile Ehlers-Danlos Syndrome and POTS, Lauren shares her long and complicated journey through a diagnostic maze, frequent medical gaslighting, and the significant impact of finding knowledgeable and empathetic healthcare providers. Despite her struggles, Lauren started a YouTube channel, POTS Zebra, to raise awareness and support others facing similar conditions. This episode highlights the importance of community, persistence, and self-advocacy in managing chronic illnesses. Highlights of this episode include: 00:00 Introduction to Zebra Talks 00:35 Meet Lauren Brown: A Journey with EDS and POTS 01:44 Early Signs and Misdiagnoses 04:13 High School Struggles and a Breakthrough 06:29 College and Beyond: Continued Challenges 12:45 A Lifesaving Diagnosis 13:46 Ongoing Health Battles and Advocacy 19:11 Finding the Right Doctor 19:45 Sharing the Journey 22:02 Medical Gaslighting and Bias 23:11 The Importance of Diagnosis 27:19 Building a Support Network 30:10 Starting a YouTube Channel 33:11 Resources and Support 36:02 Final Thoughts and Community