))
Episode 7: Trikafta
Manage episode 323627293 series 2902127
المحتوى المقدم من What The CF! A Cystic Fibrosis Podcast. يتم تحميل جميع محتويات البودكاست بما في ذلك الحلقات والرسومات وأوصاف البودكاست وتقديمها مباشرة بواسطة What The CF! A Cystic Fibrosis Podcast أو شريك منصة البودكاست الخاص بهم. إذا كنت تعتقد أن شخصًا ما يستخدم عملك المحمي بحقوق الطبع والنشر دون إذنك، فيمكنك اتباع العملية الموضحة هنا https://ar.player.fm/legal.
Welcome to Season 2 or What the CF! We're so happy to be back and ready to share lots of CF stories about treatment with you.If you're part of the CF community and not aware of Trikafta (or Kraftrio) then you've been living under a rock! This 'miracle' treatment isn't yet funded in New Zealand and we want that to change ASAP.
Edward Lee is a 39-year-old PWCF living in Wellington. He self funds Trikafta and is celebrating two years on this life-changing drug. I wanted to speak to Ed to find out more about his life with CF and his journey to getting Trikafta. Many of you will know him from various media interviews he's given and his involvement in campaigning to get Trikafta for Kiwis. Ed was very open, knowledgeable and positive about the future so I hope you enjoy getting to know him better in this podcast.
You can follow Ed on Instagram as @kiwi_cf_warrior
Love the podcast? Support us through buymeacoffee.com/wtcfpod
Find us via the links shared or on the platform links below or search What The CF! A Cystic Fibrosis Podcast where ever you get your podcasts.
20 حلقات
مشاركة
