167: What We Want New Medical Parents to Know w/ Chandra Bloomfield

The Rare Life

When we first enter this world of medical uncertainty as parents, no one gives us a handbook. None one holds our hand to walk us through what to expect, what is coming next, and what life might look like going forward.

So we asked this community, if you could go back to the beginning –knowing what you know now– what would you tell yourself as a brand new medical parent? What would you want to know right at the beginning?

And in today’s episode, I’m sitting down with Chandra Bloomfield to share those answers. We sift through all the wisdom, encouragement, and validation from seasoned parents as they share their heart with anyone coming after. And to be honest, there’s lot of tidbits in here that are relevant for more experienced parents too.

This episode is so tender and meaningful, and there is something here for everyone.

Links:

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Episodes Mentioned:

• Ep 131: Chronic Stress
• Ep 132: When Self-Care Gives Us the Swears
• Ep 138: Therapy for us
• Ep 106: Nonspeaking Episode with Brianna
• Nonspeaking Episode with Suzi
• Ep 134: Child Loss 101
• Ep 137: Life After Child Loss
• Ep 126: When to scale back on therapies
• Ep 22: "It’s All My Fault”
• Ep 157: Friendships with people without disabled kids
• Ep 153: Hurtful Things Loved Ones Say
• Ep 150: Sibling Voices
• Ep 50: The Sibling Perspective
• Ep 118: Organization
• Ep 81: Health Anxiety

Books/poems:

• The Life We Never Expected by Andrew and Rachel Wilson (faith-based)
• Special by Melanie Dimmitt
• Demystifying Disability by Emily Ladau
• Welcome to Holland by Emily Perl Kinglsey

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