ME/CFS & MCS: Emily Lim Rogers

The Chemical Sensitivity Podcast

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In this episode, I’m speaking with Professor Emily Lim Rogers. Emily is a Disability Studies researcher and educator who specializes in Myalgic Encephalomyelitis, also known as Chronic Fatigue Syndrome or ME/CFS.
She is the Mellon Postdoctoral Fellow in Disability Studies in the Department of American Studies, the Program in Science, Technology, and Society, and the Cogut Institute for the Humanities at Brown University in Providence, Rhode Island, in the U.S.
In our conversation, Emily explores:

• The nature of ME/CFS.
• How people with ME/CFS and MCS struggle to have these illnesses understood and accepted.
• Online activism as a way for people with chronic illnesses to call for change.
• The impacts of capitalism on people with ME/CFS and MCS.
• How long COVID could potentially lead to more research and understanding about ME/CFS and MCS.

Emily Lim Rogers

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1. ME/CFS & MCS: Emily Lim Rogers (00:00:00)

2. Opening clip from Emily. (00:00:05)

3. Aaron introduces the podcast and episode. (00:00:18)

4. Emily explains ME/CFS. (00:04:00)

5. Emily discusses her health status and conditions she has that are associated with ME/CFS. (00:06:18)

6. Emily explains that MC/CFS is a gendered illness and that many people with the condition are women. (00:09:03)

7. Emily discusses the role of chemicals in our everyday environment that contribute to illnesses like ME/CFS. (00:12:58)

8. Emily explores HIV/AIDS activism and how it influenced people who are activists focused on ME/CFS. (00:20:00)

9. Emily talks about the challenges that people with ME/CFS face when trying to advocate for greater awareness and recognition of the illness. (00:25:00)

10. Emily discusses impacts of capitalism on people with chronic illness, including ME/CFS and MCS. (00:30:00)

11. Emily talks about long COVID and how it may lead to wider understanding and acceptance of ME/CFS and other illnesses. (00:36:56)

12. Aaron concludes the episode. (00:41:08)