Episode 31: Patient Advocate Richie Kahn

The Charles Bonnet Syndrome Podcast

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Richie Kahn, a public health professional, clinical researcher, and patient advocate. Richie shares his personal journey with optic atrophy and Charles Bonnet Syndrome. With a background in public health and a passion for patient advocacy, Richie talks about his career in clinical research, his efforts to reduce inefficiencies in drug development, and his work through Canary Advisors to incorporate the patient perspective into clinical trials. Richie also discusses his coping strategies for Charles Bonnet Syndrome, the importance of laughter, running, using a white cane, and the critical need for raising awareness and education about vision loss and associated conditions.

Contact Info:

[e-mail]

https://www.linkedin.com/in/richiekahn/

https://www.canaryadvisorsllc.com/

For help with CBS call 704-389-0160

Contact me at [e-mail]

For the link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and caregivers support group email Dr. Cusick at [e-mail]

For the link to attend Pocklington Trust’s UK-based bi-weekly virtual CBS support group email Jonathan at [e-mail]

To register to attend the Canadian based CNIB Monthly CBS support group please use the registration link below or contact Lucia Ricardo at [e-mail] or 1-800-563-2642.

CNIB Support Group Registration

Donate