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"End the Legacy:" Fighting Familial ALS, an interview with Daniel Barvin, MBA
Manage episode 425044828 series 2853844
المحتوى المقدم من Andrew Wilner, MD, Andrew Wilner, and MD. يتم تحميل جميع محتويات البودكاست بما في ذلك الحلقات والرسومات وأوصاف البودكاست وتقديمها مباشرة بواسطة Andrew Wilner, MD, Andrew Wilner, and MD أو شريك منصة البودكاست الخاص بهم. إذا كنت تعتقد أن شخصًا ما يستخدم عملك المحمي بحقوق الطبع والنشر دون إذنك، فيمكنك اتباع العملية الموضحة هنا https://ar.player.fm/legal.
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Many thanks to Daniel Barvin, MBA, for joining me on the "The Art of Medicine with Dr. Andrew Wilner."
My good friend Michael Weisberg, MD, introduced us. I interviewed Mike on Episode #14 about his second novel, "In the End."
Daniel has an important story to tell. His family has been affected multiple times by genes that cause ALS and dementia. This first-hand experience prompted Daniel to focus his work on ALS education and advocacy. Daniel is the Co-Founder of Endthelegacy.org, a nonprofit organization that supports individuals at risk for familial ALS.
Daniel is also the Vice President of Operations and Patient Advocacy at Coya Therapeutics, a new company that hopes to find treatments for neurodegenerative diseases like ALS and dementia. Dr. Stanley Appel's research on neuroinflammation inspired the therapeutic direction of Coya Therapeutics. Dr. Appel has been actively caring for ALS patients for decades.
Please join me for this fascinating 30-minute interview with Daniel Barvin.
You can reach Daniel Barvin here:
[email protected]
For more information:
https://portal.sanogenetics.com/en-us/study/light-the-way
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