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Marfan Syndrome: A Teen Perspective
Manage episode 286493007 series 2861129
المحتوى المقدم من Tammy Flynn, Tammy Flynn: podcaster, and Special needs advocate a. يتم تحميل جميع محتويات البودكاست بما في ذلك الحلقات والرسومات وأوصاف البودكاست وتقديمها مباشرة بواسطة Tammy Flynn, Tammy Flynn: podcaster, and Special needs advocate a أو شريك منصة البودكاست الخاص بهم. إذا كنت تعتقد أن شخصًا ما يستخدم عملك المحمي بحقوق الطبع والنشر دون إذنك، فيمكنك اتباع العملية الموضحة هنا https://ar.player.fm/legal.
As we continue our Marfan Awareness Series, I am so excited to welcome, Grace Meyers, Volunteer, The Marfan Foundation.
Grace Meyers, 17, is a senior at Plymouth High School in Michigan. She be attending Eastern Michigan University next year to pursue a career in child development. Grace, who is affected by Marfan syndrome, enjoys getting involved with The Marfan Foundation. In the past, she has served as a legislative advocate and attended the Foundation's Hill Day in Washington, DC, in February 2020. She is also a member of the Foundation's Teen Council. She enjoys going to the Foundation's annual conference every year because being able to meet other teens with the same rare condition as she has "is an amazing feeling." Grace says, "Marfan Syndrome is tough, but there is definitely a positive side to it with the community."
Listen in as Grace shares her personal journey with having a complex medical condition and why she feels embracing your diagnosis and connecting with others is so very important.
Learn More: www.marfan.org
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