Regenerative Brain Cell Therapy: One Woman’s Journey to Seizure Freedom

Seizing Life

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تمت الإضافة منذ قبل six عام

المحتوى المقدم من CURE Epilepsy. يتم تحميل جميع محتويات البودكاست بما في ذلك الحلقات والرسومات وأوصاف البودكاست وتقديمها مباشرة بواسطة CURE Epilepsy أو شريك منصة البودكاست الخاص بهم. إذا كنت تعتقد أن شخصًا ما يستخدم عملك المحمي بحقوق الطبع والنشر دون إذنك، فيمكنك اتباع العملية الموضحة هنا https://ar.player.fm/legal.

Exile

1
Episode 10: From Refugee to Radical 44:09

منذ 2 years44:09

التشغيل لاحقا

قوائم

إعجاب

احب

44:09

When a young Eva Kollisch arrives as a refugee in New York in 1940, she finds a community among socialists who share her values and idealism. She soon discovers ‘the cause’ isn’t as idyllic as it seems. Little does she know this is the beginning of a lifelong commitment to activism and her determination to create radical change in ways that include belonging, love and one's full self. In addition to Eva Kollisch’s memoirs Girl in Movement (2000) and The Ground Under My Feet (2014), LBI’s collections include an oral history interview with Eva conducted in 2014 and the papers of Eva’s mother, poet Margarete Kolllisch, which document Eva’s childhood experience on the Kindertransport. Learn more at www.lbi.org/kollisch . Exile is a production of the Leo Baeck Institute , New York | Berlin and Antica Productions . It’s narrated by Mandy Patinkin. Executive Producers include Katrina Onstad, Stuart Coxe, and Bernie Blum. Senior Producer is Debbie Pacheco. Associate Producers are Hailey Choi and Emily Morantz. Research and translation by Isabella Kempf. Sound design and audio mix by Philip Wilson, with help from Cameron McIver. Theme music by Oliver Wickham. Voice acting by Natalia Bushnik. Special thanks to the Kollisch family for the use of Eva’s two memoirs, “Girl in Movement” and “The Ground Under My Feet”, the Sophia Smith Collection at Smith College and their “Voices of Feminism Oral History Project”, and Soundtrack New York.…

منذ عام واحد 26:16

MP3•منزل الحلقة

This week on Seizing Life® Annette Adkins, who has lived with intractable epilepsy since 2014, discusses the impacts of epilepsy on her professional and personal life, and how it led her to participate in a clinical trial for a new procedure that has brought her seizure freedom.

166 حلقات

#Fitness #CURE Epilepsy #Medicine

Regenerative Brain Cell Therapy: One Woman’s Journey to Seizure Freedom

Seizing Life

published منذ عام واحد

MP3•منزل الحلقة

166 حلقات

#Fitness #CURE Epilepsy #Medicine

كل الحلقات

1
Joey’s Song Musicians: Rocking for Epilepsy Research is Personal 47:38

منذ 24 يومًا47:38

47:38

This month Seizing Life® goes on location at the Joey’s Song Freezing Man Festival to speak with Kay Hanley and John Cowsill, two musicians with personal connections to epilepsy who participated in the multiday music festival to raise money for epilepsy research.

1
Fostering a Good Relationship with Your Child’s Epilepsy Care Team 32:06

منذ 7 weeks32:06

32:06

This month on Seizing Life® Patricia Dean, ARNP and the Epilepsy Network Specialist in the Comprehensive Epilepsy Center at Nicklaus Children’s Hospital in Miami, discusses managing the relationship with your child’s epilepsy care team.

1
SCN8A and Infantile Spasms: A Mother & Researcher Pursues a New Potential Therapy 40:40

منذ 12 weeks40:40

40:40

Dr. Madeleine Oudin shares her daughter’s epilepsy journey following a devastating genetic diagnosis and the onset of infantile spasms, and explains how it has impacted her work as a researcher in pursuing a new potential therapy around the SCN8A gene.

1
Rocking for Research: The Inspiration and Impact of Joey’s Song 37:33

منذ 16 weeks37:33

37:33

Joey’s Song founder Mike Gomoll shares his son’s epilepsy story and discusses the creation, growth, and evolution of Joey’s Song into the multi-artist, multi-day, “Freezing Man Festival.”

1
One Family’s SUDEP story: A Tragic Loss Drives SUDEP Advocacy and Fundraising 31:02

منذ 21 weeks31:02

31:02

In observance of Sudden Unexpected Death in Epilepsy (SUDEP) Action Day on October 16th, we speak with the Maffie family about the tragic loss of Anthony Maffie to SUDEP and their advocacy and fundraising efforts in Anthony’s honor.

1
Overcoming Seizures to Pursue a Neuroscience Degree and Help Others Living with Epilepsy 29:45

منذ 25 weeks29:45

29:45

This month we welcome Matthew Summerfield to the podcast. Matthew has lived with epilepsy since his first seizure at the age of eleven. Though he was advised early on not to tell anyone about his epilepsy, Matthew has refused to be held back by seizures, studying neurosceience as a college undergraduate, and now pursuing a PhD while working in an epilepsy research lab at the University of Iowa.…

1
Post-Traumatic Epilepsy: What We Know and Where the Research is Going 28:31

منذ 29 weeks28:31

28:31

This month on Seizing Life® we speak with Dr. Elisa Zanier of the Mario Negri Institute in Milan, Italy about the current state of research into Post-Traumatic Epilepsy (PTE) in the wake of a recent International Conference on PTE co-hosted by CURE Epilepsy.

1
The NORSE Institute: A Mother’s Loss Drives Awareness and Research into a Devastating Form of Epilepsy 34:10

منذ 34 weeks34:10

34:10

After losing her son to a rare form of epilepsy called NORSE, or New Onset Refractory Status Epilepticus, Nora Wong set out to get answers from doctors and researchers. When she found little information and more questions, she founded the NORSE Institute to raise awareness and fund research into this sudden and devastating form of epilepsy.…

1
The Sudden and Life-Altering Impact of Adult-Onset Epilepsy 34:43

منذ 38 weeks34:43

34:43

This month on Seizing Life® Jon Tuteur shares his journey with adult-onset epilepsy. From his first seizure at age thirty, through his epilepsy diagnosis, treatment, and eventual brain surgery, Jon discuses the physical and emotional impacts of seizures, medications, diagnostic tests, and medical procedures in pursuit of controlling his epilepsy. He also tells us about his forthcoming book Seizing Today: Discovering Purpose and Authenticity in a Life Changing Diagnosis…

1
Older Adults and Epilepsy: the Causes, the Signs, and the Treatments 28:27

منذ 43 weeks28:27

28:27

This week on Seizing Life® Dr. Laura O’Dwyer joins us to talk about the fastest growing segment of people living with epilepsy in the United States – older adults. Dr. O’Dwyer explains why adults are more likely to develop epilepsy later in life, outlines the challenges of recognizing, diagnosing, and treating epilepsy in older adults, and provides valuable information for older adults living with epilepsy and their caregivers.…

1
One Woman’s Epilepsy Journey Through Childhood, Parenting, Discrimination, and Surgery 36:57

منذ 47 weeks36:57

36:57

This month on Seizing Life® author Laura Beretsky shares her decades-long journey with epilepsy, from diagnosis at age 6, through college, parenting, fighting discrimination in the workplace, and ultimately seizing control of her epilepsy via life-changing surgery.

1
A Nurse’s Knowledge & A Mother’s Love Leads to Son’s Life-Changing Brain Surgery 34:21

منذ 51 weeks34:21

34:21

This month on Seizing Life® a nurse and mother shares her young son’s journey from the onset of focal seizures to a devastating diagnosis of Rasmussen’s Encephalitis to a life-changing brain surgery.

1
Artificial Intelligence and Epilepsy: The Promise & Pitfalls of AI in Diagnosis and Treatment 37:28

منذ 1 year37:28

37:28

This month on Seizing Life® we explore artificial intelligence as it relates to epilepsy care, how it’s impacting epilepsy diagnosis and treatment today, and what it promises for the future.

1
Regenerative Brain Cell Therapy: One Woman’s Journey to Seizure Freedom 26:16

منذ 1 year26:16

26:16

1
Rare Epilepsy Organizations: Fostering Community and Advancing Research 20:20

منذ 1 year20:20

20:20

This week on Seizing Life® we speak with two rare epilepsy organizations, The KCNT1 Epilepsy Foundation and The Cute Syndrome Foundation, in an episode recorded at Epilepsy Awareness Day at Disneyland this past November.

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Regenerative Brain Cell Therapy: One Woman’s Journey to Seizure Freedom