Rare Connection Episode 3: GastroParesis and POTS

Rare Connection

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Join me as I talk with Author, Student and Patient Charleigh. Charleigh has Gastroparesis (GP) and Post Orthostatic Tachycardia Syndrome (POTS). She is also a student at Pratt University and an Author of 2 books Rule 25: Don't Forget the Target and Demon Scout. In this episode Charleigh talks about her symptoms of both POTS and GP, Diagnosis and how they are affecting her studies at PRATT University. You can check out other episodes of the podcast here, on YouTube both in audio and visual formats, and wherever you get your podcasts. Donations through buzzsprout to support the show are always accepted and you can also pick up a t-shirt through Buzzsprout to support the show and my YouTube channel. If you are interested in being on the show and have a rare condition you can contact me through my YouTube channel Rare Chef through the about tab. Advocates are almost always accepted especially if you have a rare condition that has to do with dietary issues, or a symptom of one of the rare conditions.

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1. Rare Connection Episode 3: GastroParesis and POTS (00:00:00)

2. symptoms of POTS (00:02:23)

3. gastroparesis symptoms (00:03:18)

4. gastroparesis diagnosis (00:04:50)

5. pots diagnosis (00:06:15)

6. gastroparesis diet (00:07:38)

7. diagnosis journey (00:08:27)

8. impact on education (00:09:50)

9. impact on writing (00:10:32)

10. inspiration for "Demon Scout (00:12:37)

11. Inspiration for "Rule 25: Don't Fall for the Target" (00:13:07)

12. Themes and messages explored in writing (00:14:34)

13. strength to continue writing (00:15:39)

14. advice for those living with rare conditions (00:16:59)

15. influence for books (00:17:47)

16. takeaway from writing (00:19:34)

17. academic goals (00:20:17)

18. writing goals (00:20:33)

19. inspiration for books (00:21:05)