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Elaine Godley talks to David Rose | Rare Health Disease | Occipital Horn Syndrome
Manage episode 364494530 series 3110479
المحتوى المقدم من Elaine Godley. يتم تحميل جميع محتويات البودكاست بما في ذلك الحلقات والرسومات وأوصاف البودكاست وتقديمها مباشرة بواسطة Elaine Godley أو شريك منصة البودكاست الخاص بهم. إذا كنت تعتقد أن شخصًا ما يستخدم عملك المحمي بحقوق الطبع والنشر دون إذنك، فيمكنك اتباع العملية الموضحة هنا https://ar.player.fm/legal.
Elaine Godley talks to David Rose, who shares a true life experience of living with a very rare disease known as occipital horn syndrome (ohs), along with a few more common chronic health conditions.
David has been working in the rare disease industry for the last 5 years and has been doing various volunteer and trustee roles for nearly 11 years in rare disease and disability.
More about David: https://www.instagram.com/occipitalhornadvocate/ https://www.linkedin.com/in/drose2/ ~~~~~~~~~~~~~~~~~~~~ ELAINE GODLEY | Dedicated To Improving Your Health & Wellbeing 🌸 More details here: https://linktr.ee/elainegodley
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