The Fight to End PKD

Living Transplant

Jeff Robertson, founder of the PKD Foundation of Canada, joins Courtney and Brittany to talk all things polycystic kidney disease (PKD). Raised by a mother with PKD and a father juggling the roles of husband, caregiver and parent, Jeff learned firsthand what it means to live with chronic disease, as well as the life-altering power of transplant. With frank authenticity, Jeff talks about the ebbs and flows of fear that come with a hereditary disease in the family, why he started the PKD Foundation, mental health, and the importance of sharing your story. Also in this episode: PKD myth busting, what the resilience of chronic disease patients teaches us about coping during the pandemic, and the significance of the game Operation.

Learn more about the PKD Foundation of Canada

Established in 1993, the PKD Foundation of Canada has now positioned itself as a nation leader of clinical research and fellowship funding in the field of PKD. From the first research grant awarded in 1999, the PKD Foundation of Canada has set up chapters and support groups across the country, built an expansive and passionate volunteer network, and connected with PKD groups around the world to support our most notable fundraising event – the Walk to END PKD. Read more.

In this episode:

Polycystic kidney disease (PKD) is an inherited disorder in which clusters of cysts develop primarily within your kidneys, causing your kidneys to enlarge and lose function over time. Cysts are noncancerous round sacs containing fluid. The cysts vary in size, and they can grow very large. Having many cysts or large cysts can damage your kidneys. Read more.

This episode was recorded in March 2021