Marie Conley, PA Rare Disease Advisory Council

Being a Life Sciences Leader

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تمت الإضافة منذ قبل three أعوام

المحتوى المقدم من Life Sciences Pennsylvania. يتم تحميل جميع محتويات البودكاست بما في ذلك الحلقات والرسومات وأوصاف البودكاست وتقديمها مباشرة بواسطة Life Sciences Pennsylvania أو شريك منصة البودكاست الخاص بهم. إذا كنت تعتقد أن شخصًا ما يستخدم عملك المحمي بحقوق الطبع والنشر دون إذنك، فيمكنك اتباع العملية الموضحة هنا https://ar.player.fm/legal.

The So What from BCG

1
Re-Recruiting and Other New HR Strategies You Can’t Ignore 18:09

منذ 13 يومًا18:09

التشغيل لاحقا

قوائم

إعجاب

احب

18:09

HR is no longer just about managing people—it’s about shaping the future of work. Jens Baier, BCG’s HR transformation expert, discusses how AI and shifting employee expectations are forcing companies to rethink talent strategies. From re-recruiting to upskilling employees, HR must adapt to a rapidly changing landscape. Learn More: Jens Baier: https://on.bcg.com/41ca7Gv BCG on People Strategy: https://on.bcg.com/3QtAjro Decoding Global Talent: https://on.bcg.com/4gUC4IT…

منذ عام واحد 28:56

MP3•منزل الحلقة

In this episode hear Marie's inspiring story living with a rare disease, her motivation to help others facing rare conditions through her work with the Pennsylvania Rare Disease Advisory Council (PARDAC) and how the Conley Cushing's Disease Fund is contributing to promoting awareness.

57 حلقات

#Business #Life Sciences Pennsylvania #Trading #Entrepreneur

Marie Conley, PA Rare Disease Advisory Council

Being a Life Sciences Leader

published منذ عام واحد

MP3•منزل الحلقة

57 حلقات

#Business #Life Sciences Pennsylvania #Trading #Entrepreneur

كل الحلقات

1
Adrian Rawcliffe, Adaptimmune 29:14

منذ 5 أيام29:14

29:14

This episode features Adrian (Ad) Rawcliffe, CEO, Adaptimmune, recipient of the Life Sciences PA 2024 Patient Impact Award. Ad shares the story behind TECELRA - the first FDA approved engineered cell therapy for a solid tumor. Learn about the journey leading up to this groundbreaking approval, the challenges of bringing a cell therapy to market and the next steps for Adaptimmune in the landscape of tumor treatments.…

1
Fred Vogt, Iovance Biotherapeutics 28:41

منذ 12 يومًا28:41

28:41

This episode features Fred Vogt, Interim CEO at Iovance Biotherapeutics, recipient of the 2024 Patient Impact Award. In this episode, Fred shares the journey behind AMTAGVI - the first FDA approved tumor infiltrating lymphocyte (TIL) therapy. Learn about the clinical trial process, how they brought this groundbreaking treatment to market, the impact the Iovance team has on the life sciences industry and how the state of Pennsylvania is supporting Iovance's efforts to treating patients.…

1
Rob Albert, B. Braun 23:16

منذ 18 يومًا23:16

23:16

This episode features Rob Albert, CEO of B. Braun of America, the organization receiving the 2024 Patient Impact Award. Hear from Rob and discover how B. Braun took decisive action during Hurricanes Helene and Milton to secure the supply of critical I.V. fluids to hospitals affected by these disasters. Learn how they collaborated with government agencies like the Administration for Strategic Preparedness and Response (ASPR), navigated challenges, and ensured patients had the necessary resources in a time of crisis.…

1
Adele Oliva, 1315 Capital 29:59

منذ عام واحد29:59

29:59

Adele Oliva, recipient of the 2025 Hubert J.P. Schoemaker Leadership Award joins Chris and Rachael to discuss her impact on the life sciences industry in PA supporting the growth of commercial stage healthcare companies. In this episode, hear how her career path ultimately led to finding a gap in the ecosystem and later found 1315 Capital. Learn about the best way to build a strong team and how she hopes the 1315 impact will live on for generations.…

1
Jeff O'Donnell, Runway Healthcare 39:53

منذ عام واحد39:53

39:53

This episode features Jeffrey O'Donnell Sr., the recipient of the 2025 John Nash MedTech Leadership Award. This award recognizes an outstanding leader in the PA MedTech community who best exemplifies the spirit of innovation. Learn how Jeff's passion for medicine and curiosity led him to take leaps throughout his career that altered his life and the work of the med tech community in Pennsylvania and beyond.…

1
Paul Frankhouser, 2025 Scientific Achievement Award Honoree 31:03

منذ عام واحد31:03

31:03

Season 7 of Being a Life Sciences Leader launches with interviews with our 2025 Annual Award Honorees. Paul Frankhouser will be honored with the 2025 Scientific Achievement Award for his decades of experience bringing innovative technology to patients. Hear how Paul's 42 year career at Arrow International led to his participation in hundreds of patents and how he continues to give his expert advice to organizations in the medical technology space today…

1
Suzanna Masartis, Community Liver Alliance, LIVE from LSPA's Patient Summit 24:51

منذ عام واحد24:51

24:51

The season finale of Being a Life Sciences Leader features a LIVE recording from our Patient Summit held in November 2024. Suzanna Masartis, CEO of the Community Liver Alliance, joins Chris and Allison Nicklin of Goodwin to discuss her journey from volunteering at a young age to advocacy and collaboration with other non-profit leaders to enact change. Hear best practices on working with your local and state legislators to educate them on legislation that affects patient access.…

1
Kyle Bryant, FARA 28:13

منذ عام واحد28:13

28:13

Episode 6 features Kyle Bryant, Senior Director, rideATAXIA & Spokesperson, Friedreich's Ataxia Research Alliance (FARA). Hear Kyle's inspiring story of living with a rare disease, Friedreich's Ataxia, and how he incorporates his passion of cycling to empower those living with Friedreich's Ataxia and raise funds for research. Kyle is also co-host of the Two Disabled Dudes podcast, available wherever you listen to podcasts.…

1
Rob Long, Uplifting Athletes 28:41

منذ عام واحد28:41

28:41

Episode 5 features Rob Long, Executive Director, Uplifting Athletes. Rob tells his inspiring story of being a D1 athlete and NFL draft prospect to persevering through a rare form of brain cancer. Tune in to learn more about Rob's experience and how Uplifting Athletes is leveraging the platform of sports to build a community that invests in the lives of people living with rare diseases.…

1
Lesa Brackbill, Leukodystrophy Newborn Screening Action Network 26:33

منذ عام واحد26:33

26:33

In this episode, Lesa shares how her daughter's diagnosis of Krabbe disease and tragic passing launched her into a career of advocacy, ultimately leading to legislative action in Pennsylvania around newborn screening panels and access for patients.

1
Marie Conley, PA Rare Disease Advisory Council 28:56

منذ عام واحد28:56

28:56

In this episode hear Marie's inspiring story living with a rare disease, her motivation to help others facing rare conditions through her work with the Pennsylvania Rare Disease Advisory Council (PARDAC) and how the Conley Cushing's Disease Fund is contributing to promoting awareness.

1
PA Breast Cancer Coalition 1:12:21

منذ عام واحد1:12:21

1:12:21

Episode 2 features Pat Halpin-Murphy , President & Founder, and Joanne Grossi , Executive Vice President of the PA Breast Cancer Coalition . Listen to their inspiring stories and experiences, the reason hey are taking action in the fight against breast cancer , and the contributions they have made to finding a cure.…

1
Kristin Smedley, Curing Retinal Blindness Foundation 31:31

منذ عام واحد31:31

31:31

The latest episode features Kristin Smedley, mother of two children with retinal blindness. Kristin explains how she went from school teacher to advocate, sharing anecdotes of "wins and losses" in her fight for patient access.

1
John Crowley, Hubert J.P. Schoemaker Leadership Award 29:50

منذ عام واحد29:50

29:50

In this episode, John Crowley, recipient of the 2024 Hubert J.P. Schoemaker Leadership Award, discusses how his children's diagnosis of a rare disease altered his career path to becoming a leader in the life sciences. Learn more about John's motivation to improve the lives of patients through his new role as President & CEO at BIO.…

1
Jeffrey Dayno, MD, Frank Baldino CEO of the Year Award 23:39

منذ عام واحد23:39

23:39

In this episode, Jeff Dayno, MD, recipient of the 2023 Frank Baldino Bioscience CEO of the Year Award, discusses his role as the CEO of Harmony Biosciences. Learn more about the leadership traits Jeff utilizes to combat external challenges, develop treatments for rare diseases and drive growth.

مرحبًا بك في مشغل أف ام!

يقوم برنامج مشغل أف أم بمسح الويب للحصول على بودكاست عالية الجودة لتستمتع بها الآن. إنه أفضل تطبيق بودكاست ويعمل على أجهزة اندرويد والأيفون والويب. قم بالتسجيل لمزامنة الاشتراكات عبر الأجهزة.