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Parenting A Complex Child, Advocacy, Support Group, & Passion with Michelle Choairy S7 E42
Manage episode 448818157 series 2498151
first pregnancy at 38 no amniotic fluid at 29 weeks sent straight to hospital
3 weeks on bed rest and had a C section at 32 weeks. He was 3 lbs 1 oz and stayed in NICU for 4 weeks.
He fell behind in all milestones and didn't like to eat.
18 months I knew something was wrong and started looking for help. I found an OT that got me Regional Center help. This is our state's program.
at 3 he still wasn't saying any words. so I started searching for speech therapist that could help. We ended up in Connecticut.
forward to when he was 8 and we were able to get a genetic test and he was diagnosed with TBR1 a rare genetic disorder with 190 kids in the world with it. He is one in 190.
I am now helping moms with complex kids take the steps they need to get help for them with early intervention.
I am a mom of a complex kid. I have been my son’s best advocate and have learned through the years what it takes to get the best care for my child.
I am the Founder of Collective Wisdom for Complex Kids, a support group for mothers with children with disabilities.
I have a passion for helping families re-evaluate and prioritize their dynamics, along with guiding them from confusion to clarity while raising complex children.
FIND HER HERE:
https://www.facebook.com/wisdom4complexkids
359 حلقات
Manage episode 448818157 series 2498151
first pregnancy at 38 no amniotic fluid at 29 weeks sent straight to hospital
3 weeks on bed rest and had a C section at 32 weeks. He was 3 lbs 1 oz and stayed in NICU for 4 weeks.
He fell behind in all milestones and didn't like to eat.
18 months I knew something was wrong and started looking for help. I found an OT that got me Regional Center help. This is our state's program.
at 3 he still wasn't saying any words. so I started searching for speech therapist that could help. We ended up in Connecticut.
forward to when he was 8 and we were able to get a genetic test and he was diagnosed with TBR1 a rare genetic disorder with 190 kids in the world with it. He is one in 190.
I am now helping moms with complex kids take the steps they need to get help for them with early intervention.
I am a mom of a complex kid. I have been my son’s best advocate and have learned through the years what it takes to get the best care for my child.
I am the Founder of Collective Wisdom for Complex Kids, a support group for mothers with children with disabilities.
I have a passion for helping families re-evaluate and prioritize their dynamics, along with guiding them from confusion to clarity while raising complex children.
FIND HER HERE:
https://www.facebook.com/wisdom4complexkids
359 حلقات
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×مرحبًا بك في مشغل أف ام!
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