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The Importance of Diverse Representation in Clinical Trials
Manage episode 367968820 series 2923408
المحتوى المقدم من Ronda F Jefferson. يتم تحميل جميع محتويات البودكاست بما في ذلك الحلقات والرسومات وأوصاف البودكاست وتقديمها مباشرة بواسطة Ronda F Jefferson أو شريك منصة البودكاست الخاص بهم. إذا كنت تعتقد أن شخصًا ما يستخدم عملك المحمي بحقوق الطبع والنشر دون إذنك، فيمكنك اتباع العملية الموضحة هنا https://ar.player.fm/legal.
On this episode, I will be speaking with Erica Courtenay-Mann, an advocate for patients with Sarcoidosis. She gives talks regarding what it's like to live with chronic illnesses & she is involved in the Women of Color Committee and the ACTe Now! Patient Committee. She is a strong voice to raise awareness about the importance of clinical trials, especially in communities that are underrepresented. With each step taken towards more inclusive clinical trials and the data gained from them, we grow closer to a better understanding of how “snowflake" diseases progress.
Links for further information:
https://www.stopsarcoidosis.org/
Mayo Clinic - Information on Clinical Trials and Sarcoidosis Research
Contact Info -
Podcast: See the Invisible: Living with an Invisible or Rare Disease
Contact: Email: Seetheinvisible2020@gmail.com
Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter
Facebook: SeetheInvisible2020 | Facebook
Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos
YouTube: SeeTheInvisible - YouTube
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