98. rolling out the red carpet for the albinism conference

Rare with Flair

hi hello hey, it feels so good to have reunited again this year!

If you’ve followed us for some time, you’ll know we’re both pretty involved with a couple nonprofits. We’ve talked at length about the Hermansky-Pudlak Syndrome Network and their annual conferences (listen to episodes from 2021, 2023, and 2024).

We also love working with (and in Case’s case, working for) the National Organization for Albinism and Hypopigmentation (NOAH). Even though their conferences are biennial (every other year), we always come back feeling empowered and refreshed after volunteering and catching up with friends. We hope you enjoy this year’s conference recap, and maybe take a stroll down memory lane with our 2022 NOAHcon recap!