Fierce Advocacy for Those Who Live with Lymphedema: A woman’s 13-year battle to get the Lymphedema Treatment Act passed in the US

Everything Cancer

Heather worked relentlessly to improve accessibility to and coverage of Lymphedema Treatment vastly!
In this compelling episode of Everything Cancer, we sit down with Heather Ferguson, founder and executive director of the Lymphedema Advocacy Group, recently known as Lymphedema Treatment Act.org. Find out how Heather’s 13-year odyssey at the level of national legislature enabled her to change the name of her organization from “Treatment Act” to “Advocacy Group”!

Heather shares her inspiring advocacy journey, spurred by her son's diagnosis and incredulity at the lack of coverage for Lymphedema Treatment over simple wording.

This episode sheds light on the complexities of living with lymphedema, the importance of effective treatment, and the significant legislative triumph with the passing of the Lymphedema Treatment Act. Heather offers practical tips for patients facing insurance denials, emphasizing the importance of appealing and leveraging support from state departments and HR departments.

https://lymphedematreatmentact.org/

Newsletter for Lymphedema Advocacy Group https://lymphedematreatmentact.org/category/newsletter-archives/

Contact Heather at [e-mail]

Slower

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at [e-mail]
The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.
Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.
Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/
Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...