The Difference of a Decade: A Conversation with Childhood Cancer Advocate Jonathan Agin

Childhood Cancer Talk Radio Podcasts

This edition of Childhood Cancer Talk Radio gives a personal look at the landscape of childhood cancer advocacy over recent years, between parents of children afflicted with brain cancer. For this, I have the honor of sharing conversation and perspective with fellow advocate Jonathan Agin, whose participation in the childhood cancer community spans this past decade and beyond; he brings significant legal, biotech, corporate management and parental experience to the field, which has seen advances in legislation, the formation of new networks benefiting patients and families, and greater participation of parent advocates at the federal level. From this perspective, we take a look at the actual progress made for our children who become diagnosed with various cancers, the still deadly and lesser-known yet largely prevalent subtype of childhood brain cancer, with a hopeful look toward the near future as the need for greater research into causes and conditions begins to get more attention with the Childhood Cancer Prevention Initiative. Most recently, In January 2021 Jonathan formed PREP4Gold (Preparation, Research, Education and Programs for Childhood Cancer--formerly "Connor Cures") and serves as Executive Director.