FabryCast podcast

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تمت الإضافة منذ قبل عام واحد (one)

المحتوى المقدم من Canadian Fabry Association. يتم تحميل جميع محتويات البودكاست بما في ذلك الحلقات والرسومات وأوصاف البودكاست وتقديمها مباشرة بواسطة Canadian Fabry Association أو شريك منصة البودكاست الخاص بهم. إذا كنت تعتقد أن شخصًا ما يستخدم عملك المحمي بحقوق الطبع والنشر دون إذنك، فيمكنك اتباع العملية الموضحة هنا https://ar.player.fm/legal.

Via Podcast

1
Close Encounters with UFO Hot Spots: Area 51, Roswell, and the Great ET Road Trip 39:50

منذ 16 يومًا39:50

التشغيل لاحقا

قوائم

إعجاب

احب

39:50

The truth is out West! We’re hopping on the ET Highway and venturing to the most notorious alien hot spots, including Roswell’s infamous crash site, Area 51’s eerie perimeter, and a mysterious desert watchtower. Join us as journalist Laura Krantz, host of the podcast Wild Thing , beams up to share stories from the front lines of UFO reporting—from strange sightings and quirky festivals to a mailbox where people leave letters to extraterrestrials. Maybe you’ll even decide for yourself: Is Earth a tourist stop for spaceships? UFO hot spots you’ll encounter in this episode: - UFO Watchtower (near Great Sand Dunes National Park, Colorado) - Roswell, New Mexico - Area 51, Nevada - Extraterrestrial Highway (aka State Route 375), Nevada - Little A’Le’Inn, ET Highway, Nevada - E.T. Fresh Jerky, ET Highway, Nevada - Alien Research Center, ET Highway, Nevada - The Black Mailbox, ET Highway, Nevada Via Podcast is a production of AAA Mountain West Group .…

FabryCast

منزل السلاسل•Feed

The FabryCast brings the human element of living with a rare disease. It’s a podcast for important conversations that teaches small bits of information, practical insights, and things you can do today to positively impact your life with Fabry.

Hear from experts in the field, have the opportunity to “Ask a Doctor Anything” and keep up to date with what's happening in the Fabry space.

11 حلقات

#Fitness #FabryCast

FabryCast

updated منذ عام واحد

منزل السلاسل•Feed

Hear from experts in the field, have the opportunity to “Ask a Doctor Anything” and keep up to date with what's happening in the Fabry space.

11 حلقات

#Fitness #FabryCast

كل الحلقات

1
Fabry and Mental Health with Christine Leighland 52:30

منذ 11 weeks52:30

52:30

How does Fabry disease impact mental health? What role do anxiety, pain management, and emotional well-being play in the patient journey? Julia Alton and Christine Leyland explore these questions, discussing coping strategies like mindfulness and cognitive behavioral therapy. How can acceptance and self-compassion make a difference? Why is psychotherapy so important? They also dive into the Be Rare, Be You campaign, the challenges of tough decisions, and the vital role caregivers play.…

1
Decision Fatigue with Jennifer Siedman 35:12

منذ 15 weeks35:12

35:12

Julia Alton and Jennifer Siedman delve into the complexities of decision-making, particularly in the context of chronic illness and rare diseases. They explore the concept of decision fatigue, the emotional toll it takes on caregivers and patients, and the importance of understanding one's decision-making style. Jennifer shares insights from her personal experiences and professional expertise, emphasizing the need for emotional awareness and support in the decision-making process. The discussion also highlights the challenges of navigating clinical trials and the significance of shared decision-making in fostering empowerment and confidence.…

1
The Critical Role of Biomarkers in Rare Diseases with Christiane Auray-Blais 22:23

منذ 26 weeks22:23

22:23

This conversation delves into the complexities of Fabry disease, a rare lysosomal storage disorder, and the critical role of biomarkers, particularly Lysogb3, in diagnosis and treatment monitoring. The discussion highlights the importance of awareness among healthcare providers, the significance of early detection, and the advancements in research aimed at improving patient outcomes. Christiane Oribelle shares her insights on the methodologies used in biomarker analysis and the implications for patient care, emphasizing the need for compliance and proactive communication between patients and their healthcare teams.…

يقوم برنامج مشغل أف أم بمسح الويب للحصول على بودكاست عالية الجودة لتستمتع بها الآن. إنه أفضل تطبيق بودكاست ويعمل على أجهزة اندرويد والأيفون والويب. قم بالتسجيل لمزامنة الاشتراكات عبر الأجهزة.

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المدونة الصوتية تستحق الاستماع

1
Close Encounters with UFO Hot Spots: Area 51, Roswell, and the Great ET Road Trip 39:50

FabryCast

FabryCast

المدونة الصوتية تستحق الاستماع

كل الحلقات

1
Fabry and Mental Health with Christine Leighland 52:30

1
Decision Fatigue with Jennifer Siedman 35:12

1
The Critical Role of Biomarkers in Rare Diseases with Christiane Auray-Blais 22:23

1
Fabrycast Trailer 1:56

1
Fabry + Sleep with Dr. Robert Hopkin 31:29

1
Fabry & Heart Health with Dr. Gavin Oudit 25:48

1
Grieving The Life You Didn’t Have with Sam Wu 53:12

1
Behind The Lab Coat: Fabry Testing & Why It Is So Important with Kaye LeMoine 22:37

1
Fabry Care with a Functional Perspective with Dr. Seema Kanwal 28:26

1
Ask A Doctor Anything with Dr. Aneal Khan 17:03

1
Fabry 101 with Dawn Laney 31:23

مرحبًا بك في مشغل أف ام!

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Count on Me

The Let Them Theory: A Life-Changing Tool That Millions of People Can't Stop Talking About

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المدونة الصوتية تستحق الاستماع

FabryCast

FabryCast

المدونة الصوتية تستحق الاستماع

مرحبًا بك في مشغل أف ام!

2025 - American Silver Eagle .999 Fine Silver with our Smyrnacoin Certificate of Authenticity Dollar Uncirculated US Mint

Count on Me

The Let Them Theory: A Life-Changing Tool That Millions of People Can't Stop Talking About

Apple AirTag

The Let Them Theory: A Life-Changing Tool That Millions of People Can't Stop Talking About

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