Autoimmune Encephalitis podcast

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The Vanished

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منذ 6 weeksمنذ 6w ago

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Join us on a journey into the perplexing world of disappearances, where individuals vanish without a trace, leaving behind a void filled with questions and speculation.

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14 year old Jillian Cash was recently diagnosed with Autoimmune Encephalitis, a type of brain inflammation where the body's immune system attacks healthy cells and tissues in the brain or spinal cord. It is a rare, complex disease that can cause rapid changes in both physical and mental health. Sarah Cash is Jillian's mother, and with the help of host Jon Beerman, is here to tell her ongoing story.

3 حلقات

Autoimmune Encephalitis

updated منذ 3 أعوام

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3 حلقات

كل الحلقات

1
Immunoglobulin Treatments 40:19

منذ 3 years40:19

التشغيل لاحقا

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إعجاب

احب

40:19

After receiving her official diagnosis for AE in July 2021, Jillian and her mom Sarah get us up to speed on her status after two immunoglobulin treatments. For more information on the disease of AE (Autoimmune Encephalitis) please visit: https://autoimmune-encephalitis.org/ This podcast is produced by Carmel Sound Lab. For more information please visit: www.carmelsoundlab.com Theme music "Juggling Mum" by Jon Beerman.…

1
The Confirmed Diagnosis, Initial Treatment, and Plan 47:11

منذ 4 years47:11

47:11

Autoimmune Encephalitis is a rare disease that has historically been very difficult to diagnose. It mostly affects young women and sometimes goes undiagnosed or misdiagnosed for years, often times being passed off as a psychological disorder or torrets syndrome. In Jillian's case, the doctors also had a hard time diagnosing her and it took about 6 months to get there. In this episode, host Jon Beerman is joined by Jillian Cash, Sarah Cash, and Jillian's grandfather Tom. They discuss the jounrey of getting to a fully confirmed diagnosis, her initial treatment plan, and the plan moving forward. Below are a few resources for additional information on Autoimmune Encephalitis: International Autoimmune Encephalitis Society - https://autoimmune-encephalitis.org/ Brain On Fire (movie) - https://www.imdb.com/title/tt3704700/ Carmel Sound Lab (podcast production studio) - www.carmelsoundlab.com If you have any questions or would like any additional information please email carmelsoundlab@gmail.com…

1
The Diagnosis 49:42

منذ 4 years49:42

49:42

With the help of host Jon Beerman, Sarah Cash describes the very difficult process of getting an Autoimmune Encephalitis diagnosis for her 14-year old daughter, Jillian. The journey to get the diagnosis has been challenging to say the least and it is only the beginning. She was diagnosed in late March 2021 and is currently awaiting results of the spinal tap. For more info about this rare disease please go to https://autoimmune-encephalitis.org/ IMPORTANT NOTE: After the recording of this podcast, it was determined that Jillian was not officially diagnosed with AE as they needed to do more testing, but as of late June 2021 she was confirmed to have the disease. Episode 2 was recorded shortly after her official diagnosis and treatment.…

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The Vanished

Autoimmune Encephalitis

Autoimmune Encephalitis

المدونة الصوتية تستحق الاستماع

كل الحلقات

1
Immunoglobulin Treatments 40:19

1
The Confirmed Diagnosis, Initial Treatment, and Plan 47:11

1
The Diagnosis 49:42

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المدونة الصوتية تستحق الاستماع

Autoimmune Encephalitis

Autoimmune Encephalitis

المدونة الصوتية تستحق الاستماع

مرحبًا بك في مشغل أف ام!

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