Tight Lipped podcast

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Symptomatic: A Medical Mystery Podcast

1
Case #28: Ian 47:46

منذ 11 يومًا47:46

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إعجاب

احب

47:46

Ian Stedman suffered 32 years with full body rashes, debilitating headaches, joint pain and hearing loss without a clear diagnosis. His Mother Barb had gone over 60 years with the same symptoms. After hundreds of doctors visits and decades of frustration - they had resigned to believe there were no answers. That is until Ian’s daughter, Lia was born covered in that all-too-recognizable rash. Ian re-ignited his search for answers in an effort to save his family. We want to hear from you! Share your own medical mystery or tell us about the episode you connected with the most at Symptomatic@iheartmedia.com or drop us a voice note at https://www.speakepipe.com/symptomatic DISCLAIMER: By submitting your voice note using the link provided, you acknowledge that we have permission to potentially include that audio in future content. * * * * * * ****** SPOILER ALERT BELOW ****** You can learn more about the Canadian Autoinflammatory Network at www.autoinflammatory.ca SickKids CA can be found online at www.sickkids.ca See omnystudio.com/listener for privacy information.…

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Tight Lipped is a storytelling podcast that makes public what is often thought of as “private pain.” We ask big questions about female chronic pain. We explore how gender, race, sexual orientation and class impact women and non-binary folks' experiences of healthcare and of their own bodies. Our show focuses on conditions that are extremely common (like vestibulodynia, vaginismus and endometriosis), yet carry with them a social stigma and often impact mental health, identity and intimate relationships.

20 حلقات

#Fitness #Tight Lipped

Tight Lipped explicit

updated منذ عامين

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20 حلقات

#Fitness #Tight Lipped

كل الحلقات

Tight Lipped

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BONUS: Aguantando 35:22

منذ 2 years35:22

35:22

Bonus episode: "Holding It In" in Spanish! Cualquier noche de la semana no es nada raro encontrarse a Gabriela perreando al ritmo de Bad Bunny. Ella ama bailar, pero hay una razón por la que está en la pista de baile: tiene que "soltar la pelvis". Hoy Gabriela está viviendo su mejor momento. Aunque hace poco tiempo no era todo color de rosas. Estaba atada por dolorosos síntomas urinarios que no comprendía aparte de estar estancada en una relación con un hombre que no era el compañero que ella necesitaba. En este episodio, conoceremos como mediante su experiencia con el dolor pélvico crónico Gabriela transformó su relacion con las citas, el sexo y (aun más importante) con ella misma.…

Tight Lipped

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12: Beyond the Books 32:57

منذ 2 years32:57

32:57

Over and over again we hear stories from patients with vulvovaginal and pelvic pain who have struggled for years to find care. These patients have been told things like “just drink a glass of wine” or “you must have repressed sexual trauma.” We wanted to find out, what are medical students and residents taught about these conditions? And why don’t most OB/GYNs know the steps to help? In today’s episode, we’re getting a peek into another side of the conversation: what’s missing from medical education and training. We hear from medical providers and students who are working to close the gaps and we learn about Tight Lipped’s advocacy work, focused on ensuring that every OB/GYN residency program teaches about pain.…

Tight Lipped

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11: Loving Through This 33:34

منذ 2 years33:34

33:34

Jazzmine and Jordan have been together for almost a decade. They’ve built a beautiful and fulfilling life in Iowa and you could say that they’re the “perfect” couple. But, there’s one thing that most people don’t know about their relationship: they’ve never had penetrative sex. While Jazzmine used to keep this secret, now she and Jordan are ready to share how they navigate chronic vulvovaginal and pelvic pain together. Even as recently as the 1960s, American courts were declaring that a marriage without regular penetrative sex was an invalid marriage. In today’s episode, we hear how Jazzmine and Jordan have worked to redefine intimacy in their relationship and resist social and historical narratives about marriage and sex.…

Tight Lipped

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10: The DSM 30:13

منذ 3 years30:13

30:13

In 1991, Marjorie Wantz made headlines when she died through physician-assisted suicide. She had suffered for years with chronic vulvovaginal and pelvic pain. Marjorie hoped that an autopsy would prove what she’d insisted all along: that her pain was real. But, in the aftermath of her death, the medical community painted Marjorie’s condition as psychological, and imaginary. Why did doctors still not believe Marjorie Wantz even after she took her own life to stop the pain? In today’s episode, we’re exploring how and why vulvovaginal pain became understood as a psychological issue. We hear from Hannah Srajer, who researched the development and evolution of “vaginismus” as a diagnosis over the last 100 years.…

Tight Lipped

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9: Holding It In 32:54

منذ 3 years32:54

32:54

On a typical weekday night, you can find Gabriela twerking to Bad Bunny. She loves to dance, but there’s another reason she’s out on the dance floor: to release her pelvic floor. Gabriela’s living her best life these days. Yet, not that long ago, things looked pretty bleak. She felt held back by painful urinary symptoms she didn’t understand, and stuck in a relationship with a man who wasn’t the partner she needed. In today’s episode, we hear how Gabriela’s experience with chronic pelvic pain transformed her relationship to sex, dating, and (most importantly) herself.…

Tight Lipped

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Season 2 Trailer 2:37

منذ 3 years2:37

2:37

We are thrilled to be back with the second season of Tight Lipped’s podcast. Our first episode drops on Friday, May 5th!

Tight Lipped

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Tight Lipped Presents: How to Do the Pot 25:26

منذ 4 years25:26

25:26

You can learn more at https://dothepot.com/.

Tight Lipped

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8: Power in Numbers 36:38

منذ 5 years36:38

36:38

Today, we’re bringing you a story of change. One that gives a glimpse of what’s possible when patients, researchers, and policy makers come together to fight for a healthier, more hopeful future. In 1994, Phyllis Mate led a small, dedicated group of women to found the National Vulvodynia Association, the NVA. Their mission was to be the central destination for the most up to date resources and research on vulvodynia. The problem? There wasn’t any medical information on the condition. On today’s episode we learn how a small group of vulvodynia patients fought for research and solutions to a problem they were taught not to talk about. Full Disclosure: The National Vulvodynia Association is a sponsor of The Tight Lipped Podcast. A note on gendered language in this episode: we want to be clear that not all women have vaginas, and that not all people with vaginas are women. In this episode, you'll hear the term "women" used to be consistent with clinical research and data available on this topic. However, vulvar pain can affect people of all genders and across the spectrum of gender identities.…

Tight Lipped

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7: Why did y'all offer this to me? 30:01

منذ 5 years30:01

30:01

After nearly a decade of ER visits and dismissal from doctors, Samantha Denae was finally diagnosed with endometriosis. But then, she needed to figure out how to treat it. Over and over again she was told to get a hysterectomy. Black patients like Samantha are much more likely to receive a hysterectomy than white patients. But, why is that? This is the second episode in our two-part series about how race and class influence endometriosis diagnosis and treatment. We learn about how centuries of sterilization abuse and medical racism ignited the fight for reproductive justice, which continues on today.…

Tight Lipped

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6: The Career Woman's Disease 39:43

منذ 5 years39:43

39:43

The myth that Black women don't develop endometriosis is almost a century old and yet it still persists to this day. Where did this idea come from? How did endometriosis come to be labeled the "career woman's disease"? And, why is it harder for Black patients, and working class patients, to get diagnosed? Today's episode is the first in a two-part series exploring how race and class influence endometriosis diagnosis and treatment. We learn about the story of the doctors who established this myth -- and one doctor who dedicated his life to debunking it.…

Tight Lipped

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Tight Lipped Presents: The Secret Lives of Black Women 53:32

منذ 5 years53:32

53:32

Today we're sharing an episode from another podcast we love, The Secret Lives of Black Women - a show about everything from sex and self-care to rage and anxiety. In this episode, Dr. Debra Hardy-Cartwright shares her own story navigating the medical world as a Black OBGYN and her perspective on how race and class influence the kind of care we receive.…

Tight Lipped

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Tight Lipped Presents: Call Your Girlfriend 27:44

منذ 5 years27:44

27:44

Today we're sharing an episode from another podcast we love, Call Your Girlfriend. CYG is a podcast for long-distance besties about feminism, politics, health, pop culture, and friendship. This episode features an interview with author Maya Dusenbery and explores the research behind why medical institutions frequently dismiss and underestimate chronic pain and patients' accounts of their own symptoms.…

Tight Lipped

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Tight Lipped Presents: NATAL 24:55

منذ 5 years24:55

24:55

Today we're sharing an episode from another podcast we love, NATAL - a docuseries about having a baby while Black. The show highlights the voices of Black parents, birthworkers, medical professionals, researchers, and advocates. This episode takes us on a deep dive into the roots of racism in obstetrics and gynecology.…

Tight Lipped

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Tight Lipped Presents: Bodies 9:45

منذ 5 years9:45

9:45

Today we're sharing an episode from another podcast we love, Bodies. The show is about medical mysteries - and the questions that emerge when trying to understand what's happening inside your own body. This episode follows Allison's journey to find out why sex suddenly became painful.

Tight Lipped

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5: Embodied Knowledge 32:19

منذ 5 years32:19

32:19

In the late 1960s, it was difficult to access basic information about women's health. Jane, frustrated by her doctors' paternalistic attitude, decided to do more research about her own body so she could advocate for herself. With a group of activists in Boston, Jane and 11 others began taking matters into their own hands and went on to write the groundbreaking book “Our Bodies, Ourselves,” which redefined the women’s health movement. In today's episode, we explore how one group of women came together to build community, educate themselves, and change how we talk about and treat women's bodies.…

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