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Seizing Life

CURE Epilepsy

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Seizing Life® is a CURE Epilepsy podcast and videocast aiming to inspire empathy, offer helpful stories, and give hope as we search for a cure for epilepsy. Listen as guests share stories and insights on living with epilepsy in conversation with our host, Kelly Cervantes.
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Journalist Lauren Aguirre and Dr. Elizabeth Thiele, the authors of the recently published “Epilepsy for Dummies,” discuss their collaboration and explain why their perspectives as epilepsy patient/parent and provider were essential in creating a reliable resource for those living with epilepsy and those who love them.…
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Dr. Kendra Cagniart shares her son’s journey with epilepsy, from a traumatic birth in which he arrived in status epilepticus through his current period of seizure freedom at the age of 9. This is an amazing and ultimately hopeful journey of a young boy living with epilepsy.بقلم CURE Epilepsy
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Dr. Olivia Hoffman, post-doctoral researcher in Dr. Avtar Roopra’s lab at the University of Wisconsin-Madison, discusses one of the most exciting discoveries in epilepsy research in recent years, a repurposed drug that has shown remarkable promise in eliminating seizures and restoring cognition in mice.…
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This week on Seizing Life®, journalist, television executive, and mother Scarlette Whyte joins us to share her family’s experience with Panayiotopoulos Syndrome, a type of early childhood epilepsy with which two of her three children have been diagnosed.بقلم CURE Epilepsy
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Longtime CURE Epilepsy Champion and current board member Shalee Cunneen comes back to the podcast to share her family’s journey with epilepsy and fundraising efforts for a new CURE Epilepsy research initiative.بقلم CURE Epilepsy
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Mike Simmel shares his epilepsy journey, explains how his passion for basketball helped him navigate the impacts of epilepsy, and recounts how a personal experience with epilepsy stigma inspired him to help kids with epilepsy and other challenges.بقلم CURE Epilepsy
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Dr. Connie Tomaino, music therapist and co-founder of the Institute for Music and Neurologic Function, discusses how music therapy is used to treat neurologic conditions and explains what we know about the power of music to heal the brain.بقلم CURE Epilepsy
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This month on Seizing Life® Dr. Kelly Tyson shares her decade-long journey to an epilepsy diagnosis. Despite numerous visits to various medical experts through the years and majoring in neuroscience in college, Kelly was never referred to a neurologist, nor did she recognize the “episodes” she experienced as seizures. Kelly details how she managed …
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This month Seizing Life® goes on location at the Joey’s Song Freezing Man Festival to speak with Kay Hanley and John Cowsill, two musicians with personal connections to epilepsy who participated in the multiday music festival to raise money for epilepsy research.بقلم CURE Epilepsy
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Dr. Madeleine Oudin shares her daughter’s epilepsy journey following a devastating genetic diagnosis and the onset of infantile spasms, and explains how it has impacted her work as a researcher in pursuing a new potential therapy around the SCN8A gene.بقلم CURE Epilepsy
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In observance of Sudden Unexpected Death in Epilepsy (SUDEP) Action Day on October 16th, we speak with the Maffie family about the tragic loss of Anthony Maffie to SUDEP and their advocacy and fundraising efforts in Anthony’s honor.بقلم CURE Epilepsy
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This month we welcome Matthew Summerfield to the podcast. Matthew has lived with epilepsy since his first seizure at the age of eleven. Though he was advised early on not to tell anyone about his epilepsy, Matthew has refused to be held back by seizures, studying neurosceience as a college undergraduate, and now pursuing a PhD while working in an e…
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This month on Seizing Life® we speak with Dr. Elisa Zanier of the Mario Negri Institute in Milan, Italy about the current state of research into Post-Traumatic Epilepsy (PTE) in the wake of a recent International Conference on PTE co-hosted by CURE Epilepsy.بقلم CURE Epilepsy
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