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Rare Jongens, de podcast

Universiteit van Nederland

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Wie denkt dat klimaatproblemen, feminisme of superrijken typisch dingen van nu zijn, heeft het mis. De Romeinen hadden er ook mee te maken. In de podcast Rare Jongens vertelt historicus Olivier Hekster (Radboud Universiteit) hoe de Romeinen omgingen met dingen waar we ook nu mee te maken hebben. Samen met Merijn Doggen (hoofdredacteur Universiteit van Nederland) bekijkt hij wekelijks onze tijd door de bril van de Romeinen.
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RARECast

RARECast

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RARECast is a Global Genes podcast hosted by award-winning journalist Daniel Levine. It focuses on the intersection of rare disease with business, science, and policy.
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Rare with Flair

Casey Greer and Cassandra Mendez

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Casey + Cassandra are a pair of best friends with the same rare disease. Their goal is simple: sharing their lives to showcase the beauty and normalcy in disability, while having fun together. They’ll also touch on accessibility, friendships, style, and everything in between as they live their best, rare, lives! For show notes, go to rarewithflair.com
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Hello, welcome to A Rare Breed Podcast! My name is Avee (Aw-vee) your host. This show will bring you entertainment and enlightenment. My opinions on topics from politics, social ideology, culture, and more! I try to keep it light, sweet and to the point. I want to give you my juicy take on what is going on in the world and keep the movement of conservative's going strong. The left will not win!
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Rare But Real

Audrey Broggi

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Young women have been growing up with an indoctrination of what womanhood is and what it should be. They've been taught everything that is in direct opposition to the Word of God. Young women who want to be different from the world are rare but they are real. Audrey Broggi will often be joined by her daughter and her daughters-in-law who desire to be discerning in a day when everything seems to go against God's design.
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Hosted by Dan Cleary, RFR is a comedy podcast that aims to be just that; in rare form. Sex, race, religion, conspiracy, controversy... nothing is off limits! The faint of heart need not apply. Follow us on Instagram & Twitter: @RareFormRadio - subscribe wherever you get your podcasts - Give us a rating & review if you'd be so kind. Support this podcast: https://podcasters.spotify.com/pod/show/rareformradio/support
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Rare Cuts Media Society

Rare Cuts Media Society

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Welcome to the Rare Cuts Media Society! A Book Club Style show where we dive into Movies, TV, Books, Music, and more. Each month one of us will choose a new piece of media to dive into and discuss. Make sure you watch, listen, and read along with us each month so you will be ready for our discussion. Warning: There will be Spoilers!
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RareWine Podcast - Viden om vin

RareWine Podcast - Viden om vin

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Lær mere om vin og vinens forunderlige verden mens du er på farten - dét er præmissen for denne, ikke helt traditionelle, podcast udgivet af RareWine Group. Vi har kombineret podcastformatet med det bedste fra lydbøger. Således kan du her finde vores yndlingsartikler og portrætter om de største producenter og de mest populære vinområder serveret i en række korte podcast-episoder, som du kan lytte til mens du er på farten. Bliv klogere på selveste Domaine de la Romanée-Conti, lær om hvorfor C ...
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General talking of jujitsu jokes movies , music health and mind set ,fitness normal chit chat also looking at my record collection and living in my local community chatting to friends and the wife at some point and anyone who drops in at my secret matted training area The Ninja Loft . .
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Rare Kidney Disease Show

Travere Therapeutics

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Welcome to the new Rare Kidney Disease Show part of the RKD Scientific Network sponsored by Travere Therapeutics. The Rare Kidney Disease Show is your primary source for cutting-edge insights, expert perspectives, and pivotal updates in nephrology. Led by our panel of experts, explore the advances in glomerular nephropathies through compelling conversations, challenging case studies, and discussions tackling hot topics. Join us as we strive to provide you with the ultimate resource to suppor ...
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Wait How Do You Spell That? is a rare disease podcast produced by Patient Worthy. We talk about issues affecting people rare and underdiagnosed conditions and interview advocates from across the community. We‘re definitely not doctors, and we can‘t give you medical advice. We‘re just here to chat and learn about the diseases that even doctors can‘t seem to spell. Check out the latest in rare disease news at PatientWorthy.com.
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The Rare Life

Madeline Cheney

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This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface fo ...
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Formerly Nutrition Equity, rare connection is an extension of the podcast to include all 10,000 rare conditions and not just those covered by the Medical Nutrition Equity Act. Some of the conditions may be the same, but I am trying to turn this into a learning experience for those in the medical feild, policy leaders, and those who are just interested in hearing about rare conditions and patient stories. Rare conditions are called zebras hence the zebra striped ribbon. More common conditions ...
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Welcome to P4A Let’s Talk Rare, a monthly podcast highlighting the most important developments in the world of rare diseases orphan drug, cell and gene therapy, hosted by Georgie Rack and Owen Bryant of Partners For Access. To find out more about Partners For Access and our commitment to sustainable orphan drug access for patients with high unmet need, visit partners4access.com
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Life Life Rare

Stephen V. Smith

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Are you facing trials? Are physical and mental challenges weighing you down on our journey? Through his experiences with the rare disease myasthenia gravis, host Stephen V. Smith shares encouragement and inspiration as he seeks to create a life of meaning and connection. "Live Life Rare" is the companion podcast to the newsletter of the same name, which can be found at liveliferare.com. Join in the conversation as Stephen helps us discover and pursue what a rare life means to each of us.
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Raising Rare

Raising Rare

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Imagine the excitement of becoming a new parent and then within hours finding out your child has a serious developmental disorder. That is exactly where Sanath Kumar Ramesh found himself in the summer of 2018. One year later, on his son’s first birthday, they found out that their son, Raghav, had an extremely rare mutation of the GPX4 gene. At the time, doctors told them that Raghav may be the only one on the planet with this genetic variant who had lived beyond one month of life. The progno ...
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Join the nano-rare disease community! Interviews features leading physicians, scientists, biotech experts, and patient advocates. Lessons teach core concepts about drugs. Our host Dr. Crooke has led the creation of antisense technology and his foundation, n-Lorem, is using this powerful technology to discover, develop, and provide personalized experimental antisense oligonucleotide medicines to nano-rare patients for free, for life. n-Lorem is a non-profit organization established to apply t ...
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I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because ea ...
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RareErth Podcast

Manoj Radhakrishna

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RareErth Podcast explores work, creativity and entrepreneurship. Over the years we’ve all found ourselves asking that question, “What am I passionate enough about to take risks for?” RareErth podcast is a collection of insights and conversations with some of those who have heeded their creative spirit or entrepreneurial calling. Learn more at https://www.rareerth.com
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Karena menulis dan merekamnya dengan suara adalah cara mengabadikan sebuah kenangan yang telah usai. Support this podcast: https://podcasters.spotify.com/pod/show/heirare/support
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A podcast for parents and families of people living with rare diseases in Ontario. I Care for Rare is a social advocacy campaign, designed to give individuals, families and caregivers living with rare diseases a collective voice for system healthcare AND community support reform.
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Medium Rare

Caleb & Josh

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"Medium Rare is a brand-new talk show podcast from the minds behind G33k P0p. Join us every fortnight for discussions of topics that we think are interesting, regardless of if it's what you want to hear"
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Join us for a one-hour rare disease community support group. Here we will discuss the topics that affect your daily life in rare diseases as well as special needs. Being a parent is hard but having a child in rare disease takes a special kind of person and the journey is filled with potholes along the way. The pathway may never be clear, but together we can navigate by supporting each other. P.S. we are not a glum lot!
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Rare Cryptid Pods

Rare Cryptid

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The home of Schwarzenegger Watch Together, the podcast that chronologically critiques the career of actor, bodybuilder, politician and American hero Arnold Schwarzenegger, and other projects
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In this episode, I talk with Wendy about her life as a Special Education Teacher, and yoga instructor and her new book "Kiss You Love, Goodbye" Wendy talks about her how she found her knew purpose in life after she wasn't able to teach again. How she adapted to life after teaching. Support the showبقلم Joanna
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As heart-breaking as it is, if you’ve been in the rare disease community for long enough, you probably know someone, maybe even someone close to you, who has lost a child. And because that potential reality looms large for so many of us, this loss can affect us as well. In this episode, Rose Watson, whose daughter Lavender has Trisomy 18, joins me …
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In this episode we talk about JSA being purchased by CGC, Topps putting Victor Wembanyama RPA's in Topps Dynasty boxes, a recap of the Rare Elements Spring Sports Cards Show and so much more! Check out the YouTube channel and come and interact with us in our socials! Instagram: https://www.instagram.com/rare_elements1/ Twitter: https://twitter.com/…
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As Raising Rare continues to grow and evolve we are going to start bring in professionals that have beneficial stories for Rare Parents. These are individuals who have dedicated their lives to helping families in one aspect or another as they care for their children. Their viewpoints, stories, and perspectives are uniquely beneficial to parents tha…
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Wie deed het met wie bij de Romeinen? Opvallend: het maakte niet zoveel uit met wie je het deed. Het ging erom hoe je het deed. Seks draaide allemaal om macht, vertelt Olivier Hekster (Radboud Universiteit) en natuurlijk met de opkomst van het christendom veranderde ook op seksueel gebied voor de Romeinen alles. --- Send in a voice message: https:/…
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SPECIAL EDITION: Jonathan Hudson is a Global Trial Leader in Pulmonary Hypertension at Janssen Research & Development and is accompanied by colleague Josephine Garcia-Ferrer, Ph.D and Medical Manager. Jonathan and Josephine discuss Pulmonary Arterial Hypertension (PAH), the importance of clinical trials, what they entail, and share information on J…
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In this Episode of the Sarc Fighter podcast, we learn how Walgreens is making Sarcoidosis a priority for its customers. Not only is Walgreens doing a fundraiser for the Foundation for Sarcoidosis Research -- the chain is talking about the disease and spreading the word that sarcoidosis is out there, that patients need help, and that the disease nee…
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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Matt Trudeau, head of ITF Therapeutics—a division of Italy's Italfarmaco—on treating Duchenne muscular dystrophy with givinostat, a histone deacetylase inhibitor.بقلم Rare Care Podcast
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In this episode of the podcast we talk with Kristina Robinson, a patient advocate and mother whose son, Axel, was diagnosed with hemophilia A when he was 10 months old. That’s a rare bleeding disorder, sometimes called “classic hemophilia,” that is characterized by excessive bleeding from cuts, unexplained bruising, joint swelling and more. Since h…
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Each time one of the cells in your body divides to form a new cell, 3 BILLION genetic letters must be accurately duplicated. That’s a big number and mistakes DO happen in everyone. That’s right, if you’re reading this, you have a genetic mutation. On This Episode We Discuss: Your genetic alphabet – nucleotides How to think about DNA Replication Typ…
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Overview: In this episode of the Rare Kidney Disease Show, Dr. Rovin, Professor of Internal Medicine and Pathology at Ohio State University and chair of the RKD Scientific Network and Podcast, discusses advances in the management of IgAN through a patient case study. “IgAN progresses more often than we thought and progresses even in patients with l…
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hi hello hey, it’s March, which officially marks TEN years of our friendship! Since meeting at our very first Hermansky-Pudlak Syndrome Conference in 2014, we’ve always been friends, but our relationship has grown and changed over time. What started as periodic FaceTime calls became talking daily and maintaining a nearly four-year-old podcast! If y…
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Who is the Proverbs 31 woman and what makes her life significant? In this episode, GraceAnna gives an overview of Proverbs 31 and encourages women to really know this model woman. If you would like to order a copy of GraceAnna's scripture writing journal, it is available here: https://unashamedtruth.org/shop/p/a-vision-for-motherhood-sr4pg Rare But…
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Michele Herndon’s son Mitchell began developing symptoms of an ultra-rare neurological condition in 2012. He went for five years without answers and in 2017, enrolled in the Undiagnosed Diseases Network, an NIH-funded research study that seeks to diagnose people with the most puzzling conditions. He was diagnosed with the genetic disease Mitchell s…
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Rand sits down with Steven Ward of VyFinance to discuss what they have been building including their new Dex tooling and Launchpad. Ground Breaking Dex & Launchpad | VyFinance Learn more about VyFinance at https://app.vyfi.io/vaults Learn more about Rare Evo at https://rareevo.io/ Follow us on Twitter: https://twitter.com/RareEvo Tickets on sale no…
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I've Been Meaning to Watch That! RCMS continues its theme of Movies that are on our proverbial list, but we haven't gotten around to watching. Andrew picks the 90’s alien in the suburbs movie, Suburban Commando. Picked up as some kind of Arnold Schwarzenegger reject (no, really), the movie actually has an all-star cast including Christopher Lloyd, …
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Welcome to this month's episode of the Let’s Talk Rare: The Life Science Podcast by Partners4Acess. Georgie and Owen are joined by Nick Meade, Head of Policy at Genetic Alliance, to discuss the challenges faced by rare patients in accessing life-saving medicines. Together they explore the EU joint HTA legislation coming into force in January 2025, …
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