Podcast by Rare Candy
RARECast is a Global Genes podcast hosted by award-winning journalist Daniel Levine. It focuses on the intersection of rare disease with business, science, and policy.
"Rare & Scratchy Rock 'N Roll" is a rockumentary podcast series that tells the greatest rock and roll stories on record. This includes the untold tales of some great hits that time forgot, but maybe you'll still remember. These programs are hosted by Radio Dave, a veteran disc jockey and published authority on rock and pop music history. He draws his "Rare & Scratchy Rock 'N Roll" stories from his "groove yard," an archive that has more music than most record libraries.
Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.
Welcome to the Dream Rare Podcast! An audio experience aiming to lift you up, make you laugh & help you get healthier all while bringing you some of the best news analysis on Earth.
Matt Condon and Jonathan Mann explore what it means to own things on the blockchain and beyond.
Hosted by HCPLive, the monthly series tackles the intricate details of the 6,000-plus known rare diseases, featuring an expert guest, one disease at a time.
We discuss the sports card hobby with our own unique takes and authentic reactions to sports card news!
Casey + Cassandra are a pair of best friends with the same rare disease. Their goal is simple: sharing their lives to showcase the beauty and normalcy in disability, while having fun together. They’ll also touch on accessibility, friendships, style, and everything in between as they live their best, rare, lives! For show notes, go to rarewithflair.com/podcasts
A monthly podcast highlighting the most important news developments and its impact on the orphan drug, cell and gene therapy world. Visit www.partners4access.com/podcasts/
Welcome to the Rare Cuts Media Society! A Book Club Style show where we dive into Movies, TV, Books, Music, and more. Each month one of us will choose a new piece of media to dive into and discuss. Make sure you watch, listen, and read along with us each month so you will be ready for our discussion. Warning: There will be Spoilers!
Fascinating lives, deep convictions, dedication to self-mastery...these are the stories within Rare Air. Meri Fatin's curiosity and light touch as an interviewer allows the teller to guide the narrative. Prepare to be enlightened.
Hosted by Dan Cleary, RFR is a comedy podcast that aims to be just that; in rare form. Sex, race, religion, conspiracy, controversy... nothing is off limits! The faint of heart need not apply. Follow us on Instagram & Twitter: @RareFormRadio - subscribe wherever you get your podcasts - Give us a rating & review if you'd be so kind. Support this podcast: https://anchor.fm/rareformradio/support
This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface fo ...
RareGem Productions, a positive media production, promotion and consulting company.
I want to share information about living with and dealing with a chronic or invisible disease. This is made even more difficult if the disease is rare. I'll share my story and also invite some guests to share their viewpoints and experiences. There are hundreds of different types of diseases out there that are invisible and can the sufferer feel more alone. I'm hoping to help the patient, families and other support systems better communicate and empathize with each other. ***Disclaimer - Thi ...
Imagine the excitement of becoming a new parent and then within hours finding out your child has a serious developmental disorder. That is exactly where Sanath Kumar Ramesh found himself in the summer of 2018. One year later, on his son’s first birthday, they found out that their son, Raghav, had an extremely rare mutation of the GPX4 gene. At the time, doctors told them that Raghav may be the only one on the planet with this genetic variant who had lived beyond one month of life. The progno ...
RareErth Podcast explores work, creativity and entrepreneurship. Over the years we’ve all found ourselves asking that question, “What am I passionate enough about to take risks for?” RareErth podcast is a collection of insights and conversations with some of those who have heeded their creative spirit or entrepreneurial calling. Learn more at https://www.rareerth.com
Join the nano-rare disease community! Interviews features leading physicians, scientists, biotech experts, and patient advocates. Lessons teach core concepts about drugs. Our host Dr. Crooke has led the creation of antisense technology and his foundation, n-Lorem, is using this powerful technology to discover, develop, and provide personalized experimental antisense oligonucleotide medicines to nano-rare patients for free, for life. n-Lorem is a non-profit organization established to apply t ...
I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because ea ...
Podcasts to help business owners accelerate growth and sell their companies for maximum value. Episodes hosted by the team at RareBrain Capital, a leading M&A Advisory. Presenters explore all aspects of growing a business, tackling common performance problems, and selling a business for highest value.
Conversations started by The Whitworth Group
Facts are facts if you would like to share your story or be apart of the podcast email me at firstname.lastname@example.org
Podcast by rarebirdlit
Funny in Spanish Cover art photo provided by Nahil Naseer on Unsplash: https://unsplash.com/@nahilnaseer
Welcome to the VeryRarePodcast
New Simplicity Channel. Robert Bonet's Music No Published
Every beginning carries within it the seed of its own destruction.
Continuous mixes of deep house, 90s hip hop and other groovy goodness...
Funny and........ N O T H I N G
Karena menulis dan merekamnya dengan suara adalah cara mengabadikan sebuah kenangan yang sudah usai. Support this podcast: https://anchor.fm/heirare/support
Two girls dropping gems in all areas of life! From your social to your personal life hopefully what we talk about can help you!
"Medium Rare is a brand-new talk show podcast from the minds behind G33k P0p. Join us every fortnight for discussions of topics that we think are interesting, regardless of if it's what you want to hear"
Forty Fivan is a San Francisco based DJ & record collector, highly regarded for his creative mixes, and deep collection of rare Brazilian vinyl.
This is a podcast tutorial
Welcome to RARELY GOING: AN ANIMATED STAR TREK PODCAST, devoted to the Paramount+ series Star Trek: Lower Decks, Star Trek: Prodigy and beyond. Hosted by Craig McKenzie & Luke Winch, join them as they dig into every new episode of animated Star Trek, alongside a range of Star Trek-loving guests... A proud member of the We Made This podcast network.
We are the newest way to grade and showcase your most valuable collectibles. Elevating the space by bringing transparency back to the collectors.An inside look and discussion of all things collectible with Rare Edition's Staff + Guests.
A series of eclectic mixes from my vinyl record collection- check for regular updates and downloadable classics.
Stories and Testimonies about 22Q11.2 and all rare and not so rare disorders and causes
The home of Schwarzenegger Watch Together, the podcast that chronologically critiques the career of actor, bodybuilder, politician and American hero Arnold Schwarzenegger, and other projects
A platform that discuss current Topics as well as promote Upcoming Underground Artist And the #1 Goal is to Appreciate the “ REAL” because it’s Rare
Entertainment jokes life real life
RF is devoted to experimental, electronic, noise, improv, electro acoustic, avant-pop, and out-there music. Strange sounds, lovingly presented.
Wait How Do You Spell That? is a rare disease podcast produced by Patient Worthy. We talk about issues affecting people rare and underdiagnosed conditions and interview advocates from across the community. We‘re definitely not doctors, and we can‘t give you medical advice. We‘re just here to chat and learn about the diseases that even doctors can‘t seem to spell. Check out the latest in rare disease news at PatientWorthy.com.
The Rare Frequency podcast is devoted to experimental, electronic, avant-pop, and other unusual music. Tune in to the regular radio show each Thursday from 7-10pm (EST) on WZBC 90.3 Newton. Visit www.rarefrequency.com for the internet stream
Since 1972, the Book Arts Press and Rare Book School have offered more than 600 public lectures on a wide variety of bibliographical topics.
Ye rolled up with Milo & Nick Fuentes to Tim Pool’s beanie bunker for what could have been the best podcast of the year. Instead, Beanie boy pretended like you can’t talk about groups… after he himself talked about groups. Then he acted SHOCKED that Kanye went into the “anti-Semitism” stuff when Tim started the interview with a smear article. This …
In this episode, PHA Australia CEO, Annie Whitaker, gives a raw account of her connection to pulmonary Hypertension as carer to her son Tim, who lost the PH War in 2006. Annie discusses how one promise to her son has helped her work through grief. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on soci…
#201 - Back in the saddle! Jane’s Addiction tour wrap. Work nightmares. Heidi meets Heartthrob. Searching for a mother. Sunday matinee with Ministry. Heidi reflects on her touring days. --- Support this podcast: https://anchor.fm/rareformradio/support
In October, Alnylam said it would halt development of a therapy for a rare eye disorder to evaluate the impact of the Inflation Reduction Act. The decision is a reflection of the unintended consequences that policies can have on rare disease drug development. We spoke to Amanda Malakoff, executive director of the Rare Disease Company Coalition, abo…
In this episode we talk about the Luka NT 1/1 Logoman sale, Topps Chrome Update going hobby, kinda, a recap from our show this past weekend, an interview with our good friend Jake O'Neal from Bangers Sports Cards and so much more! Check out our YouTube channel and come holla in our socials! Instagram: https://www.instagram.com/rare_elements1/ Twitt…
We catch up with Kaigani, famous decompiler of the CryptoKitty genome, and chat PFPs, Meebits DAO, his ArtBlocks projects, artist sustainability, Hollywood and of course his current project, Mxtter.
hi hello hey! reunited at last! Surprise! In honor of Casey’s 30th birthday, Cassandra went to visit, and we recorded an extra special episode together. We hope you enjoy it as much as we loved recording it. Also, do you like the new tagline?بقلم Casey Greer & Cassandra Mendez
In this episode, I will be talking to Dr. Vegas Brown about Cerebral Cavernous Malformations and the Breaking Barriers for Black Health Empowerment initiative to help address the disparities that still plague the Healthcare System, especially for black Americans that have a rare disease. Photo Credit - Integra LifeSciences Angioma Alliance - https:…
"We changed the world to start to see that automobile dependence was not a good thing...we were much hated by the automobile associations, the vehicle companies, the oil companies. They used to run people who would follow us everywhere. And they were given money to write papers attacking us." Professor Peter Newman reflecting on his work in the US …
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Darlene Shelton, founder and president of Danny's Dose Alliance, a Missouri-based nonprofit that seeks to ensure proper emergency medical care for all patients with hemophilia and other bleeding disorders.بقلم Rare Care Podcast
#200 - Todd Newman returns for the 200th episode! New injuries. Name changes. Tour emergencies. Thanks to everyone for all the support over these 200 episodes! Wow. --- Support this podcast: https://anchor.fm/rareformradio/support
When you have a child with a disability or other medical complexity, the holidays can feel like a minefield, as trauma triggers, anxiety, and grief for what we wish the holidays could have been for our families lurk around every corner. And on top of that, having to manage schedules, special diets, gift expectations, and uncomfortable commentary fr…
Part 2 in the Short Fiction on the Screen Series! This Month, Mike Picks Charlotte Perkins Gilman’s short story “The Yellow Wallpaper” and the 2011 (or is it 2012) Logan Thomas film based on the story. This version of of the film is an adaptation, somewhat prequel, and something entirely different from the original story. And it includes vampires….…
MyFitnessFeelingz returns to the show to talk about the FTX/Sam Bankman-Fried scandal, Tom Brady, Richard Fleischer's Soylent Green (1973), and much more Follow MyFitnessFeelingz on Twitter https://twitter.com/fitnessfeelingzFor Premium Rare Candy Episodes and written content, become a subscriber of the Rare Candy Substack https://rarecandy.substac…
In this episode, Stan continues his lecture series on organs, focusing on the pump of the cardiovascular system – the Heart. Organs are individual tissue components that help meet the needs of an entire organism (that’s you). The heart is one of the most important, complex, and fascinating organs in your body. Learn all about the heart that’s worki…
R&SRNR_170 – “THE COMPLETE HIT SINGLES HISTORY OF THE BEACH BOYS, PART 2” This is the second of two episodes spotlighting the most enduring rock and roll band in American History. – the Beach Boys. No matter what the season, it’s always summer whenever and wherever their songs are playing. They’ve sold more than 100 million recordings around the wo…
From what they had for lunch to some of Kevin’s most meaningful moments. In this different episode, Sanath and Brittany ask Kevin about his experience at the 2022 Global Genes Patient Advocacy Summit. While we all planned to meet there, it just was not in the cards. Kevin recorded the episode on location from the Town & Country resort in San Diego.…
Winds of change are howling in Germany, with the draft healthcare bill now approved to stabilise SHI fund finances. What will manufacturers, with innovative orphan drugs and cell and gene therapies, launch strategies be? With the latest decision from Janssen to avoid the German market altogether for x2 Rare Oncology innovative drugs, will this be a…