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The Parkinson's Project

The Parkinson's Project

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The Parkinson's Project Podcast uses first-person experiences, expert analysis, and cutting-edge information from the field of medicine. Our mission is to empower and inform people about the work that is currently being done and to drive research and innovation for new and better methods to combat PD. From personal experiences to medication, exercise, diet, therapy, and caregiving, the Parkinson’s Project Podcast seeks to build an engaged, supportive community while examining the journey of ...
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The last week in April, Eric Tostrud and ‘The Zone’ in Hudson, Wisconsin, will host the 8th annual ‘Peleton4Parkinson’s’ fundraiser. Eric started the event as a way to give back for an exercise bike he had received and as a way to honor his mother, a lifetime fitness devotee, who contracted Parkinson’s Disease late in life. The success of Peleton4P…
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Dr. George Ackerman wears many hats. At times he is, or has been an attorney, a police officer, and a professor. As you might guess, George’s mother was quite proud of him, and he gives most of the credit for his accomplishments to her. They were as alose as mother and son could be so when George lost his mom before her time was due, he decided to …
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In this episode of the Parkinson’s Project Podcast, educator, speaker, service animal advocate Marty Lukaszewski actually recalls his Parkinson’s diagnosis “happily.” Marty says PD has enabled him to look at life differently, and a big reason for his optimistic outlook comes from his service dog Laverne, who is much more than his constant companion…
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In this episode of the Parkinson’s Project Podcast, speaker, blogger, author, and self-described “Parky” Tim Hague Sr. discusses the many ways he is fighting back against PD, but it’s with special pride that this former nurse describes “U-Turn Parkinson’s. After his diagnosis Tim started “U-Turn Parkinson’s” to help other people wage their own figh…
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As Vice of Public Policy for the Michael J Fox Foundation Ted Thompson knows how to navigate the ins and outs of the political landscape, but this year is something different. Thompson and the MJFF have been part of an effort to get the ambitious “Plan To End Parkinson’s Disease in front of what is now a lame-duck session of Congress. With Bipartis…
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In this episode of the Parkinson’s Project Podcast we discuss the stress that PD can put on a relationship, especially where care partners are concerned. Joan Hlas, Manager at Struther’s Parkinson’s Center in Golden Valley, Minnesota, and a social worker for almost two decades, says PD can put a strain on even the strongest relationship, but it doe…
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Chase Babcock is the Director of Operations for Rune Laboratories, a San Francisco based operation that is bringing precision medicine to neuroscience by partnering with tech heavyweights like Apple and Medtronic. The approach is to introduce a new approach aimed to benefit both patients and clinicians to not only treat neurological diseases, but t…
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As President and CEO of the Parkinson’s Foundation, John Lehr has to have a diverse skill set to go from the science lab to the community at-large with a message that conveys the urgency of the mission in terms that are easily digestible. It’s a journey Lehr knows well but it’s also a process that is always asking for refinement.…
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Polly Dawkins serves as the Executive Director of the Davis Phinney Foundation, a non-profit organization with a mission to help people with Parkinson’s live well with the disease. And while Davis Phinney has a national/international reach, Dawkins says it’s the fact that they emphasize personal relationships that makes it special.…
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Liz Ogren went into a funk after being diagnosed with Parkinson’s Disease. Back at work but feeling tired and depressed, Liz had trouble getting off the couch. A brother called and invited her to the gym but Liz kept coming up with excuses not to go. Until one day he showed up at her door and refused to take “no” for an answer.…
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Sandi Holten is a Neurologic Music Therapy Fellow at Struther's Parkinson's Center in suburban Minneapolis, MN. Sandi has spent her professional life exploring the relationship between Music and Parkinson's Disease, using music to accomplish non-musical goals in treating Parkinson's Disease. With a lifetime of experience to share and an open mind t…
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Eric Tostrud doesn’t have Parkinson’s Disease but he’s seen it up close and he knows what it can do. Tostrud’s gym offers a fitness program developed to help slow the progress of PD, and he holds an annual event to fund the fight against it. In this episode Tostrud also offers inspiration for those who are struggling to deal with PD.…
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It’s been said that “movement is medicine.” In this episode of the Parkinson’s Project, Rose Wichmann, Director of Struthers Parkinson’s Center at Park Nicollet, says that you don’t have to do one particular activity or form of exercise, but, for a whole host of reasons you HAVE to do something.بقلم The Parkinson's Project
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In this episode of the Parkinson’s Project, Susan Vold, who is, among other things, a board-certified holistic nurse, and a certified neuroscience nurse, says there is one thing she wants to make sure that every person who is diagnosed with Parkinson’s Disease takes away from their initial diagnosis and consultation.…
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In this episode of the Parkinson’s Project, Klaire Purtee, an English professor at Shawnee State University in Ohio, talks about how a medical procedure has turned out to be a game-changer for her journey with Parkinson’s Disease. Purtee says DBS therapy doesn’t cure Parkinson’s Disease, but for her at least, the medical procedure helps her forget …
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Mike Pantaleo’s day job is on the food service industry but he’s always been passionate about physical fitness. Along the way Mike has picked-up a drawer full of certifications in his work as a personal trainer, and one of his longest lasting and closest clients suffers from early onset Parkinson’s Disease. The first to admit that he is not a physi…
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In this episode of the Parkinson’s Project, Roxanne Julius, physical therapist and owner of Dellwood Travel, a travel agency located in suburban in St. Paul, Minnesota, talks about how she was inspired by the people she treats to create travel tips presentation with a goal of empowering people to get out and see the world.…
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Jen Tuccitto is an LSVT BIG Clinical Expert. Jen went into physical therapy because she loves people and she likes working with them to help them get better. An early adapter to the LSVT BIG method, Jen now instructs others on BIG, part of a movement that numbers more than 30,000 worldwide.بقلم The Parkinson's Project
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Katie Grove is a PHD in the field of Human Performance. After a career spent as the head of the undergrad Athletic Training Program at Indiana University, Katie wanted to move closer to family upon retirement. Instead of a rocking chair Katie found a new life when she climbed into the ring to join the fight against Parkinson’s Disease.…
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In this episode, ballet teacher Linda Muir, a teacher of the Movement Art Experience, explains the benefits to Parkinsonians beyond just providing physical activity, by helping them rebuild neurological pathways that may have become diminished by Parkinson’s.بقلم The Parkinson's Project
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Pat Forciea was once Minnesota’s marketing guru before a fall from grace led to prison. On the road to redemption, Pat was diagnosed with PD and knows the struggle that comes with that diagnosis first-hand. Now, Pat shares his story to let others know that there is no shame in telling people that they have PD.…
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Dr. Paul Tuite is a neurologist from the University of Minnesota who treats adult patients with Parkinson’s and other movement disorders. Among the topics Dr. Tuite addresses in this episode, he discusses how research for Parkinson's Disease has been impacted by Covid and where we are in terms of advancements in PD research.…
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In the second of two parts, Parkinsonian Jason Kopacz talks about the role his wife and family play in keeping him motivated, Team Kopacz and the relationship with Michael J. Fox’s foundation, Team Fox, and why he is so optimistic that better treatments for PD are on the way.بقلم The Parkinson's Project
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Jason Kopacz was just 36 when he was diagnosed with early onset Parkinson’s Disease. In the first of two episodes, Jason talks about his life seven years later, including his extensive support network and undergoing DBS surgery, a decision, he says, would do again in a heartbeat.بقلم The Parkinson's Project
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