أفضل بودكاسات Invisible Illness (2024)

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Musician Ann-Britt Celebrating New Music, Creativity and Chronic Illness, and Creating New Goals 53:21

29d ago53:21

53:21

Summary In this conversation, Monica Michelle and Ann-Britt discuss their shared experiences with chronic illness, particularly Ehlers-Danlos syndrome. They explore the challenges of living with a chronic condition, the importance of community support, and the therapeutic role of music in coping with illness. Ann-Britt shares her journey from being…

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Author of “Finding A New Normal: Living Your Best Life with Chronic Illness”: Suzan Jackson 49:39

2M ago49:39

49:39

Monica Michelle is joined by author Sue Jackson. Sue lives with Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and Lyme disease. In this episode, Monica and Sue discuss: Sue’s pathway to diagnosis Parenting with chronic illness and parenting a child with chronic illness Managing ME/CFS from diagnosis to creating routines Using books to…

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Using Self-Portraits to Represent Chronic Pain 1:00:29

3M ago1:00:29

1:00:29

Monica Michelle is joined by artist Kyrianna Bolles. Kyrianna lives with chronic pain. In this episode, Monica and Kyrianna discuss: Kyrianna’s struggle to be accommodated for her pain throughout school years How Kyrianna uses her portraits to help represent other’s chronic conditions The communities Kyrianna has built, from a college support group…

1
Dory’s Corner: New Podcast intro with Host Nick Clemmons 1:00:25

4M ago1:00:25

1:00:25

Monica Michelle is interviewed by consultant and content creator Nick Clemmons. Nick recently started the blog Dory’s Corner with Invisible Not Broken. A companion podcast hosted by Nick will be released soon. Nick lives with Sickle Cell Disease. Monica lives with Ehlers-Danlos Syndrome, POTS, MCAS, and Fibromyalgia. In this episode, Nick and Monic…

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Disability Access in the Education System and How to Support Disabled Folks’ Needs with Nick Clemmons 54:05

7M ago54:05

54:05

Monica Michelle is joined by consultant and podcast host Nick Clemmons. Nick lives with Sickle Cell Disease. In this episode, Monica and Nick discuss: The ways disabled folks are often forgotten in education infrastructure How Nick navigates societal limitations to achieve his goals Disability representation in the media Knowing how to realisticall…

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Vulnerability, Resiliency, and Advocacy with Tim Reitsma 47:06

8M ago47:06

47:06

Monica Michelle is joined by consultant and podcast host Tim Reitma. Tim lives with Crohn's Disease. In this episode, Monica and Tim discuss: Tim’s resiliency through managing his Crohn’s The importance of self-advocacy, especially in the workplace Tim’s podcast why he shares stories of those with invisible illness TIMESTAMPS 00:47 - Tim's diagnosi…

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Tech and Disability: What VR Offers the Disabled Community with Sunny Ammerman 1:10:27

8M ago1:10:27

1:10:27

Monica Michelle is joined by artist and disability advocate Sunny Ammerman Sunny lives with Septo-optic dysplasia, panhypopituitarism, Optic Nerve Hypoplasia, and is missing a membrane in the brain called the "septum pellucidum". In this episode, Monica and Sunny discuss: Sunny’s complex disorders and how she copes with them Everything VR provides …

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Reporting on Chronic Illness and Disability with Journalist Julia Metraux 39:16

9M ago39:16

39:16

Monica Michelle is joined by Journalist Julia Metraux. Julia lives with vasculitis, mild to moderate hearing loss, and has experienced long COVID. In this episode, Monica and Julia discuss: Julia's diagnosis with vasculitis and how it influences her journalistic lens How community impacts the mental health of those with chronic illness How Julia an…

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Author of “Pain: The Ultimate Mentor,” Physiotherapist Kevin Hunt 31:29

10M ago31:29

31:29

Monica Michelle is joined by author & physiotherapist Kevin Hunt. Kevin lives with chronic pain. In this episode, Monica and Kevin discuss: Kevin’s philosophy of pain management as a physiotherapist who experiences chronic pain. The Hexagon Model, a life-management tool for focusing on what’s important to you. Kevin’s idea behind his new book. Usin…

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Author of “Through the Pain: The Silent Suffering & Triumph of a Personal Trainer”: John K. Frazier 28:35

11M ago28:35

28:35

Monica Michelle is joined by author & personal trainer John K. Frazier. John lives with ankylosing spondylitis. In this episode, Monica and John discuss: John’s work as a physical trainer and author Chronic pain comparisons Personal triumph TIMESTAMPS 00:50 - John’s business & diagnosis 07:19 - Chronic pain olympics 09:31 - Talking about & hiding a…

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The Creative Process, Self Worth, and Dating with Disability: Laura Mustard 31:08

11M ago31:08

31:08

Monica Michelle is joined by musician Laura Mustard. Laura lives with VATER syndrome. In this episode, Monica and Laura discuss: Laura’s inspiration for her upcoming musical EP. How Laura’s illness impacted her recent relationship & self-image. Laura’s creative process, new music, and social media pressure. TIMESTAMPS 00:30 - Laura’s new EP / Monic…

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Author of “The Girlfriend’s Guide to Lupus”: Amanda Chay 30:43

11M ago30:43

30:43

Monica Michelle is joined by author Amanda Chay. Amanda lives with Sjögren’s and Lupus. In this episode, Monica and Amanda discuss: Amanda’s book & diagnosis Outlooking on work & writing Navigating chronic illness with kids & family TIMESTAMPS 00:26 - Intro + The Girlfriend’s Guide to Lupus 02:17 - Amanda’s diagnosis 10:09 - Amanda’s outlook on wri…

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Author of “Compass Points the Way”: Alexis Kline 23:14

12M ago23:14

23:14

Monica Michelle is joined by author Alexis Kline. Alexis lives with Dysautonomia. In this episode, Monica and Alexis discuss: Being a sick teenager Having an isolated diagnosis Productivity workflows TIMESTAMPS 00:28 - Alexis’s diagnosis & dog 07:18 - Sick teenager road map 10:00 - Alexis’s book & workflow 16:25 - Having an isolated diagnosis 20:50…

1
Author of “From the Sidelines to the Finish Line”: Emily Falcon 36:47

1y ago36:47

36:47

Monica Michelle is joined by author Emily Falcon. Emily lives with ALCAPA. In this episode, Monica and Emily discuss: Growing up sick Post-surgery support Having a public body Self-motivation and adventuring TIMESTAMPS 00:28 - Being a sick kid & Emily’s book title 07:28 - Mortality 10:16 - Portrayal of disability in media 12:21 - Post-surgery suppo…

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A 26-Year Search for the Right Diagnosis: Micaela Hoo 35:19

1y ago35:19

35:19

Monica Michelle is joined by writer and entrepreneur Micaela Hoo. Micaela lives with Lyme disease, bartonella, babesia, mold toxicity, parasite overgrowth, candida overgrowth, Hashimoto's disease, and Morgellons disease. In this episode, Monica and Micaela discuss: Micaela's diagnosis story Healthcare insurance TIMESTAMPS 00:24 - The start of Micae…

1
Patience, Productivity, and the “Push Through Pain” Mindset: Rita White 28:46

1y ago28:46

28:46

Monica Michelle is joined by physical therapist Rita White. Rita lives with Ehlers-Danlos syndrome, Mast Cell Activation syndrome, and POTS. In this episode, Monica and Rita discuss: Rita’s work as a physical therapist Toxic productivity mentality Happiness from self-understanding and patience TIMESTAMPS 00:38 - Rita’s diagnosis and job 04:58 - “pu…

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Navigating Work, Relationships, and Parenting with Epilepsy: Sara Staggs 32:09

1y ago32:09

32:09

Monica Michelle is joined by author Sara Staggs. Sara lives with epilepsy. In this episode, Monica and Sara discuss: Being a full-time creative with a disability Pregnancy & parenting Disability disclosure Chronic illness in media TIMESTAMPS 00:30 - Sara’s writing process 06:03 - Sara’s diagnosis & college 09:44 - Pregnancy & parenting 13:37 - Disa…

1
Talking TV, Reading, Happiness, and Parenting: Dione Bullard 36:47

1y ago36:47

36:47

Monica Michelle is once again joined by musician, chef, and activist Dione Bullard. Dione lives with End Stage Renal Disease. In this episode, Monica and Dione discuss: Favorite TV shows Favorite books Moments of delight Parenting TIMESTAMPS 02:20 - Platonic 11:42 - Somewhere Boy 14:09 - More favorite shows 21:38 - Favorite books 26:17 - Appreciati…

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Adulting on Disability Income, Reflecting on Privilege and Prejudice: Cosmo 38:12

1y ago38:12

38:12

Monica Michelle is joined by activist Cosmo C. Cosmo lives with porphyria, Ehlers-Danlos syndrome, and fibromyalgia. In this episode, Monica and Cosmo discuss: Pets LARPing Disability income and surviving on it Privilege and Prejudice TIMESTAMPS 00:33 - Cats and LARPing 12:05 - Adulting on disability income 22:01 - Privilege and prejudice 31:19 - D…

1
Resilience & Self-Advocacy in Health, Music, and Culinary Arts: Dione Bullard 41:42

1+ y ago41:42

41:42

Monica Michelle is joined by musician, chef, and activist Dione Bullard. Dione lives with End Stage Renal Disease. In this episode, Monica and Dione discuss: End Stage Renal Disease Self Advocacy as a Patient Dion’s Music & Cooking TIMESTAMPS 06:17 - Dion’s diagnosis 14:44 - Music career & food 21:42 - Self advocacy 26:05 - Disparities in care of d…

1
Chronic Pain, Opioid Hysteria, and Tech Tools for Advocacy: Kim Luke 41:50

1+ y ago41:50

41:50

Monica Michelle is joined by activist Kim Luke. Kim lives with multilevel spondylosis, POTS, and fibromyalgia. In this episode, Monica and Kim discuss: Kim’s story Pain clinic negligence Disability tech & advocacy TIMESTAMPS 00:51 - How Kim started 10:54 - Kim’s work 16:03 - Pain clinic negligence 19:33 - Healthcare in politics 27:08 - Recommendati…

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Fighting for Disability in Law, in the Entertainment Industry, and in a Pandemic Society: Julia Irzyk 35:32

1+ y ago35:32

35:32

Monica Michelle is joined by lawyer, author, comedian, and activist Julia Irzyk. Julia lives with Lupus, Osteoarthritis, Degenerative Disk Disease, and Fibromyalgia. In this episode, Monica and Julia discuss: The state of COVID-19 in 2023 Julia's new book, "Disabilities and the Law, 4th Edition" The entertainment industry Access to pain medication …

1
Charcot Marie Tooth Disease, Scoliosis, and Accessible Tech: Lisa Weiner 33:35

1+ y ago33:35

33:35

Monica Michelle is joined by activist Lisa Weiner. Lisa lives with Charcot Marie Tooth Disease and Scoliosis. In this episode, Monica and Lisa discuss: Growing up with CMT and Scoliosis Dealing with braces Living and moving around San Francisco with a chronic illness Finding community resources Discovering simple tools that can help with daily acti…

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EDS Author of Floppy - Tales of a Genetic Freak of Nature at the End of the World: Alyssa Graybeal 40:28

1+ y ago40:28

40:28

Monica Michelle is joined by award-winning author Alyssa Graybeal. Alyssa lives with Ehlers-Danlos Syndrome. In this episode, Monica and Alyssa discuss: Alyssa’s new book Monica and Alyssa discuss being a sick kid with creativity Pacing your work in a hustle-driven culture Emergency rooms & technology The benefits of talking about your story TIMEST…

1
Disabled Dungeons and Dragons NPC Cards & Miniatures: Dale Critchley 40:57

1+ y ago40:57

40:57

Monica Michelle is joined by Dale Critchley. They discuss his revolutionary Kickstarter campaign in making disabled D&D NPC Cards and Miniatures. Dale is hard of hearing and has ADHD. Limitless Champions Kickstarter Campaign TIMESTAMPS 1:35 - Dale’s Story Behind the Project 11:40 - Developing the Various Types of Miniatures 14:15- Representing Your…

1
Death with Dignity, the Right to Die: Kathryn Trueblood 42:13

1+ y ago42:13

42:13

Monica Michelle is joined by Kathryn Trueblood. Kathryn lives with Crohn’s disease and Graves disease. In this episode, Monica and Kathryn discuss: John Abraham’s when we decide how someone else should die we are playing god Compassion and Choices Covid end of life and choices TIMESTAMPS 1:11 - Kathryn and Caretaking 4:55 - Neurological Disease and…

1
Why Robots Are Our Friends and Navigating the Work World with Visual Impairments, Panhypopituitarism, and Optic Nerve Hypoplasia: Sunshine Ammerman 39:57

1+ y ago39:57

39:57

Monica Michelle is joined by artist and activist, Sunshine Ammerman. Sunny lives with Septo-optic dysplasia, panhypopituitarism, Optic Nerve Hypoplasia, and is missing a membrane in the brain called the "septum pellucidum". In this episode, Monica and Sunny discuss: National Organization for Rare Disorders (Un)Well Netflix Docuseries Working a Phys…

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M.S., Mental Health, the Fitness Industry: Marnie Bothmer 35:39

1+ y ago35:39

35:39

Monica Michelle is joined by fitness coach, Marnie Bothmer. Marnie lives with multiple sclerosis (MS). Marnie's links Marie’s Website Marnie’s Instagram In this episode, Monica and Marnie discuss: Being a Fitness Coach with a Chronic Illness Marnie’s Diagnosis Story Medical Bills Trusting your own Judgement ADHD Growing Up Religious TIMESTAMPS 2:10…

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Ethical Eating and Motherhood While Managing Chronic Pain: Allison Samon 36:09

1+ y ago36:09

36:09

Monica Michelle is joined by health coach and nutritionist, Allison Samon. Allison lives with unexplained chronic knee, back, and butt pain. Allison's links Instagram Facebook Allison’s Website In this episode, Monica and Allison discuss: Pregnancy and Motherhood Ethical Eating + Sustainability Suburban Farming Universal Design TIMESTAMPS 1:02 - Al…

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Navigating Creativity with MCAD, Interstitial Cystitis, and Fibromyalgia: Sarah Bigham 34:44

1+ y ago34:44

34:44

*This episode was recorded back in 2020 Monica Michelle is joined by artist and author, Sarah Bigham, who began writing about her experiences and painting, using dissolved medications and supplements as watercolors. Her creative endeavors are a distraction from the pain of several recent diagnoses and have been the silver lining of her medical jour…

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Accessible Travel and Disability Blogging: Carrie-Ann Lightley 29:05

2y ago29:05

29:05

*This episode was recorded back in 2020 Monica Michelle is joined by Carrie-Ann, who runs an accessible travel blog sharing accessibility reviews, disability travel guides and wheelchair travel tips. Carrie-Ann lives with: Cerebral Palsy Carrie-Ann's links Carrie-Ann’s Website Twitter In this episode, Monica and Carrie-Ann discuss: Traveling in an…

1
Living your Authentic Self with Chronic Illness: Michelle Irving 39:07

2y ago39:07

39:07

Monica Michelle is joined by Michelle Irving, a mentor for women around the world teaching them how to create a life filled with love, meaningful work and deep personal power. Michelle lives with: Autoimmune Hepatitis (AIH) Migraine Associated Vertigo (MAV) In this episode, Michelle and Monica discuss: how to ask for help and support becoming and l…

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The Lived Experience of Racism & Advocacy From an Incidental Activist: Tinu Abayomi-Paul 50:49

2y ago50:49

50:49

Monica Michelle is joined by disability activist and founder of Everywhere Accessible, Tinu Abayomi-Paul, creator of the popular hashtag #EverywhereAccessible. She is a survivor of Cancer and Chronic Pain, and she is a black woman. *This episode was recorded back in 2020 but is still very topical today. In this episode, Monica and Tinu discuss: Aff…

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Navigating the Medical World as a Woman Living with a Mysterious Illness: Sarah Ramey 49:08

2y ago49:08

49:08

Monica Michelle is joined by author of The Lady’s Handbook For Her Mysterious Illness, Sarah Ramey. Sarah Ramey lives with: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) Complex regional pain syndrome (CRPS) Postural orthostatic tachycardia syndrome (POTS) Vulvodynia Mast cell activation syndrome (MCAS) *This episode was recorded back…

1
Sex, Self-Esteem, and Body Awareness 38:35

2y ago38:35

38:35

Monica Michelle is joined by Dr. Phillips, award-winning psychotherapist and sex therapist. Dr. Phillips offers a safe, empathetic, and warm environment to help clients achieve their goals. Dr. Phillips has experience in treating LGBTQIA populations, depression, sexual challenges, anxiety disorders, trauma, bipolar disorder, substance use disorders…

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Car Shopping with a Wheelchair: Host, Monica Michelle 18:01

2y ago18:01

18:01

Note: This is my opinion only. I have Ehlers-Danlos, POTS, MCAD, and Fibromyalgia. If you just want a quick answer: Subaru Outback 2023 Hi everyone! Welcome to the new series: Disabled Tech Reviews The list of “special” and “luxury” items are not so for those of us in chronic pain. I have a budget that for my personal sit-in gets laughed out of exi…

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Social Security Disability Revealed: Why it’s so hard to access benefits & what you can do with Author Spencer Bishins 47:16

2+ y ago47:16

47:16

Interview With Social Security Disability Why It Is So Hard to Access Benefits with Author, Spencer Bishins Hosted on Acast. See acast.com/privacy for more information.

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Spina Bifida: Reading & Empathy, The ADA, Airlines and Wheelchairs 1:07:07

2+ y ago1:07:07

1:07:07

Noah: Spina Bifida*Scifi Fantasy & Escape* Reading & Empathy* New House ADA* Airlines & Wheelchairs Noah and I chat about some of my favorite topics from airlines and wheelchairs* Dr Who and other sci fi shows and how they handle disability* Universal Design * School and disabled Access * Reading Fiction and Building Empathy Invisible Not Broken is…

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A Conversation With Cosmo: Autism, Porphyria, Long Haul Covid, Media & Disability, & More 1:38:32

2+ y ago1:38:32

1:38:32

A FEW THINGS WE TALK ABOUT IN THE EPISODE CONTENT WARNING: WE DISCUSS RIGHT TO DIE ON THIS EPISODE. IF YOU ARE ANYONE YOU KNOW NEED HELP PLEASE REACH OUT TO THE CALL THE NATIONAL SUICIDE PREVENTION LIFELINE 1-800-273-8255 OR TEXT GO TO 741741 TO REACH A TRAINED CRISIS COUNSELOR THROUGH CRISIS TEXT LINE, A GLOBAL NOT-FOR-PROFIT ORGANIZATION. FREE, 2…

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VATER Syndrome, Singing Through It, Performance Art, & Disability in the Media 59:53

2+ y ago59:53

59:53

Invisible Not Broken is back with singer songwriter Laura Mustard! We talk art, writing, and music with chronic illness and disability Cute Dogs Artists Supporting Artists Disability in the media Why starving artist is a privilege issue Rereading old journals the trauma and the content mining www.lauramustard.com https://www.youtube.com/user/lauram…

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Roundtable - Setbacks and Chronic Illness with Jason and Monica 48:25

3+ y ago48:25

48:25

Monica (Explicitly Sick), Jason (Discomfort Zone) Jason from Discomfort Zone and Monica Michelle from Explicitly Sick have an open chat about what it is like to have a setback on your chronic illness protocol. Monica Michelle who has Ehlers Danlos had a setback this week while using the Ehlers Danlos Protocol, The Muldowney Method. Jason had a set …

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Roundtable - Ableism (Part 1) with Monica, Eva and Jason 1:05:27

3+ y ago1:05:27

1:05:27

Ableism comes in all shapes and sizes AND we experience it both internally and externally. Monica (Explicitly Sick), Eva (Humancare), and Jason (Discomfort Zone) talk about how they have experienced and dealt with ableism personally as well as give advice on what could work for others…plus other stuff around chronic illness and crap :p TRANSCRIPT H…

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Roundtable: Weathering the Storm with Monica and Jason 59:29

4y ago59:29

59:29

Chronic illness is a marathon and not a sprint! Monica (Explicitly Sick) and Jason (Discomfort Zone) talk about how they cope with chronic illness and other life bullshit: Finding the people that won't tell you you're crazy Pets that both comfort and injure Monica Meditating when you can't sit still Denial! YES, denial is a perfectly legitimate cop…

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Announcement from HumanCare: Call for stories! 4:34

4y ago4:34

4:34

Hello Humancare community. I have a very special announcement. I am finally launching a new collaborative segment of the podcast, a project I've been dreaming of putting out there for years now, and it requires your participation to come to life: Humancare Stories. An awareness and conflict resolution project. The Humancare Stories segment will be …

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Roundtable – 2020 in Review (WTF): with Monica, Eva, Jason and Dr. Lee 1:13:21

4y ago1:13:21

1:13:21

2020 IN REVIEW (WTF) Eva (HUMANCARE), Monica (EXPLICITLY SICK), Jason (DISCOMFORT ZONE) and Dr. Lee (SEX & CHRONIC ILLNESS) digest the good, the bad and the super f*ing ugly, upsetting "wtf" moments of 2020...but not without some positive flair! We also talk about silver linings, learnings and what's to come in 2021! ____ JOIN OUR FACEBOOK GROUP, Y…

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Roundtable - Throwback to Ep 100! Managing from Mattress: Monica and Eva 58:57

4y ago58:57

58:57

THROWBACK TO OUR 100TH EPISODE: Managing from Mattress with Eva Minkoff and Monica Michelle. In this episode, we talk about our individual experiences & tips for managing our flares on our "bed bound" days. Since the two of us have varying degrees of illness severity and mattress-bound frequency, this episode covers much of the spectrum of experien…

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Roundtable - Spoonie Gifting: Monica, Eva and Jason 50:30

4y ago50:30

50:30

Another sort of Holiday Special roundtable on gifting for people with chronic illness & disability! JOIN INB NETWORK HOSTS MONICA (EXPLICITLY SICK), EVA (HUMANCARE) & JASON (DISCOMFORT ZONE) FOR A FUN DISCUSSION ON OUR PERSONAL GIFTING IDEAS. “A little effort goes a really long way” – Jason Herterich Gift ideas mentioned throughout the episode: *No…

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Roundtable - Holiday Survival Tips (Holding Nothing Back!) 58:29

4y ago58:29

58:29

Join Monica, Eva and Dr. Lee for an untamed discussion on politics, human rights, family dynamics and, oh yeah, some holiday stuff thrown in there :p "Take it or leave it - I have an opinion" (all of us in a nutshell) Just a taste of what we talk about: Election results & compassion for human rights Love languages, sex and the "diamond rule" vs. th…

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(Sex & Chronic Illness Podcast): Introducing Dr. Lee Philips! 40:35

4y ago40:35

40:35

EPISODE 1: MEET DR. LEE PHILLIPS! Dr. Phillips introduces himself to the listeners and shares his personal battle with Lyme disease and how he became an AASECT Certified Sex Therapist. He shares with the listeners the purpose of his podcast, and this episode he also discusses the stages of chronic illness and how this will be talked about on future…

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Trailer for Discomfort Zone - The Night of the Speech 1:42

4y ago1:42

1:42

A sneak peek from Episode 10 of Discomfort Zone You can subscribe to Discomfort Zone on your favorite podcast player, including: Apple Podcasts Spotify Google Podcasts Episode Description: I was too sick to attend my sister's wedding, so she wasn't expecting me to deliver a speech. Follow Discomfort Zone on Facebook, Instagram, and Twitter Hosted o…

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Invisible Illness بودكاست

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